Navigation

Individual research recommendation details

Recommendation details

Recommendation ID: CG152/5
Question: Patient information and support:- What are the information needs of people with Crohn's disease, as defined by people with the condition, and can education and support based on these needs lead to better clinical and quality of life outcomes?
Page: 25
Any explanatory
notes (if applicable):
Why this is important:- Crohn's disease is a life-long condition that continues to have a significant impact on all aspects of life. The development of an educational and support programme could substantially reduce the cost of treatment and the social impact of the disease. Further research should be undertaken to determine the information and support needs of people with Crohn's disease. It should use qualitative techniques to identify the concerns of people with the condition and how they should be best addressed. Delphi techniques would ensure that the professional understanding of these needs was appropriate. From this work a randomised controlled trial would be designed to investigate the impact of a patient-originated programme on health outcomes, including frequency of relapse and need for surgery as well as quality of life issues.

Source guidance details

Comes from guidance: Crohn's disease
Number: CG152
Date issued: Oct 2012

Research needed into:

Effectiveness of treatment: No
Cost of treatment: No
Implementation of treatment: No
Quality of life: No
Methods of research: No

Other details

Is this a recommendation for the use of a technology only in the context of research?: No
Is it a recommendation that suggests collection of data or the establishment of a register?: No
Recommendation priority: Unrated
Recommendation status: Research Pending
Notes: 0
Date this record updated: 30-10-2012

Links and updates

This page was last updated: 20 March 2014

Accessibility | Cymraeg | Freedom of information | Vision Impaired | Contact Us | Glossary | Data protection | Copyright | Disclaimer | Terms and conditions

Copyright 2014 National Institute for Health and Care Excellence. All rights reserved.

Selected, reliable information for health and social care in one place

Accessibility | Cymraeg | Freedom of information | Vision Impaired | Contact Us | Glossary | Data protection | Copyright | Disclaimer | Terms and conditions

Copyright 2014 National Institute for Health and Care Excellence. All rights reserved.