Tailored resource for carers and care providers on supporting people to live well with dementia

This resource is aimed at both care providers and carers focusing on the key messages from each quality statement relative to each audience. It provides links to key resources, further information, and practical tools which are again relative to carers and care providers as appropriate. The resource has been co-produced by the NICE Collaborating Centre for Social Care and key people in the social care sector.

Introduction

In 2012 the number of people living with dementia was 800,000, and it is expected to rise to 1,000,000 by 2021. The cost to society is currently estimated to be £23 billion per year. This means that dementia poses a huge challenge to everyone, and to health and social care in particular.

The 2012 Health and Social Care Act gave NICE a new responsibility to develop guidance and quality standards for social care. Drawing on existing guidance, NICE quality standards describe the high priority areas for quality improvement using a set of specific, concise and measurable statements. The quality standard for supporting people to live well with dementia is one of the very first developed for social care.

Care providers need to carefully consider how the 10 statements within this quality standard relate to their service. They can then use them in a number of ways - to help assess the quality of the service they are providing; to ensure they understand which areas of dementia care that the evidence shows are a priority for improvement; to raise awareness among care staff as to the role and responsibilities they have; and to help define the training needs of their workforce.

This quality standard should be read alongside dementia quality standard 1 (2010), and the introduction of QS30 helpfully shows how both link to specific areas in the NICE dementia pathway. It also provides information about how the quality standard could contribute towards various improvement frameworks.

This document takes each of the 10 statements in turn, and shows what they mean for care providers. It also highlights resources and information that may be helpful for providers working to improve the quality of their service. 

In 2012, there were 800,000 people with dementia. By 2021, this number is expected to reach 1,000,000. Dementia is estimated to cost society £23 billion per year. This means that dementia poses a huge challenge to everyone; and to health and social care in particular.

The 2012 Health and Social Care Act gave NICE a new responsibility to develop guidelines and quality standards for social care. The NICE quality standard, Supporting people to live well with dementia (QS30), is one of the first developed for social care. It was published in April 2013.

The aim of this quality standard is to make clear what is expected of high quality health and social care for people living with dementia and their carers.

The quality standards have implications at a personal level too. What can family carers expect from health and social care? This resource looks at each of the 10 statements in the quality standard in turn and what they mean for carers and supporters of people living with dementia.

This quality standard should be read alongside NICE’s earlier dementia quality standard (QS1) (2010) which focuses more on the health needs. The introduction of the supporting people with dementia to live well quality standard (QS30) shows how both the 2010 standard and the 2013 standards link to specific areas in the NICE dementia pathway