Patients Involved in NICE (PIN) is a coalition of over 80 patient organisations and is committed to enabling patient groups to engage productively with NICE.

Independent from NICE and the pharmaceutical industry, they use their combined knowledge, experience and direct contact with patients from a wide range of conditions, to ensure NICE puts patients, carers, and patient groups at the centre of all of its work.

They act as a critical friend and a respected and equal partner in developing and shaping aspects of NICE's work. They provide a forum for enabling patient groups to engage with NICE, working alongside NICE's Public Involvement Programme.

PIN is currently updating their mission statement and Memorandum of Understanding. If you would like further information in the interim, please contact


The quarterly half-day PIN meetings are held in the NICE London office, and there is further opportunity to contribute to the work of PIN via email and at other events. The PIN meetings in 2019 are currently scheduled for the following dates, please let the exec team know on if you are interested in attending.


  • Wednesday 26 June, 9.30 am to 1pm

Get involved

If you wish to find out more about PIN, or become a member, please contact: