Recommendation ID
CG125/1
Question
Process of decision-making:- How should the process of decision-making about the choice of dialysis modality, including peritoneal dialysis, be supported?
Any explanatory notes
(if applicable)
Why this is important:- Various methods are used to support people making healthcare decisions through either formal or informal systems, but there was no evidence on which method is most effective in the choice of dialysis modality. Qualitative evidence showed that people were influenced by the experience of other patients. However, this also has the potential to harm informed decision-making, because this information is very subjective and can discourage patients from making a decision informed by their own values.
Further research is needed on how decisions about the modality of dialysis can be supported. Methods might include how you could use peer support to make decisions based on the patient's own values, the use of a decision coach and the use of structured information for children. Research should also evaluate whether these methods vary in effectiveness at different stages of the pathway or for different decisions (for example, the start of dialysis or the decision to switch modality or not). The impact of the method or timing of information-giving on clinical outcomes should be assessed. Other outcomes should include whether the information given matched the actual experience of the patient after the decision was made.

Source guidance details

Comes from guidance
Chronic kidney disease (stage 5): peritoneal dialysis
Number
CG125
Date issued
July 2011

Other details

Is this a recommendation for the use of a technology only in the context of research? No  
Is it a recommendation that suggests collection of data or the establishment of a register?   No