17 March 2015

NICE, Level 1, City Tower, Piccadilly Plaza, Manchester

The meeting will start promptly at 10:00 and is expected to finish at approximately 16:30

 Please note that this agenda is subject to change prior to the meeting.

Final Agenda

1. Welcome and introduction to format of meeting

2. Apologies

3. Any other business

4. Minutes from the last meeting held on 09 October 2014

5. Evaluation of Mucopolysaccharidosis (type IVA) – elosulfase alfa

5.1. Declarations of interest - Part 1 only (open session)

5.2. Introduction by the Chair, Dr Peter Jackson - Part 1 only (open session)

5.3. Presentation by the Lead Team, Linn Phipps, Dr Jonathan Howell and Professor Lesley Stewart - Part 1 and Part 2 (open and closed session)

5.4. Agreement on the content of the Evaluation Consultation Document (ECD) or Final Evaluation Determination (FED) - Part 2 only (closed session)

Date, time and venue of next meeting

Next HST Evaluation Meeting: Tuesday 19 May 2015 at 10:00am, NICE, Level 1, City Tower, Piccadilly Plaza, Manchester, M1 4BT.


Please note all timings are approximate.

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To register

You will receive an automated email response when you submit the registration form. If you do not receive this automated response your registration request has not been received, and you will need to complete and submit the registration form again.

The closing date for registration is Tuesday 03 March 2015. Please note that it may not be possible to accept late registration requests.

Should you have queries regarding attending this meeting, please contact the Meetings in Public Coordinator, Sandra Robinson, sandra.robinson@nice.org.uk

Please note that registrants wishing to conduct a research study on the committee meeting and/or NICE processes will require prior permission and should contact NICE Enquiry Handling by email nice@nice.org.uk   

Further information about conducting research is also available in our Common Questions and Answers about meetings in public document.


Registration period: 18 February 2015 to 03 March 2015
Registration is closed.