21 July 2015

NICE, Level 1, City Tower, Piccadilly Plaza, Manchester

The meeting will start promptly at 11:15 and is expected to finish at approximately 14:30

 Please note that this agenda is subject to change prior to the meeting.

Final Agenda

1. Welcome and introduction to format of meeting - Part 1 only (open session)

2. Apologies - Part 1 only (open session)

3. Any other business - Part 1 only (open session)

4. Minutes from the last meeting held on 17 March 2015 - Part 1 only (open session)

5. Evaluation of elosulphase alfa for treating Mucopolysaccharidosis type IVA

5.1. Declarations of interest - Part 1 only (open session)

5.2. Introduction by the Chair, Dr Peter Jackson - Part 1 only (open session)

5.3. Presentation by the Chair, Dr Peter Jackson - Part 1 and Part 2 (open and closed session)

5.4. Agreement on the content of the Final Evaluation Determination (FED) - Part 2 only (closed session)

Date, time and venue of next meeting

Thursday 17 September 2015 10:00am, NICE, Level 1, City Tower, Piccadilly Plaza, Manchester, M1 4BT.


Please note all timings are approximate.

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To register

You will receive an automated email response when you submit the registration form. If you do not receive this automated response your registration request has not been received, and you will need to complete and submit the registration form again.

The closing date for registration is Thursday 09 July 2015. Please note that it may not be possible to accept late registration requests.

Should you have queries regarding attending this meeting, please contact the Meetings in Public Coordinator, Sandra Robinson, sandra.robinson@nice.org.uk

Please note that registrants wishing to conduct a research study on the committee meeting and/or NICE processes will require prior permission and should contact NICE Enquiry Handling by email nice@nice.org.uk   

Further information about conducting research is also available in our Common Questions and Answers about meetings in public document.


Registration period: 23 June 2015 to 09 July 2015
Registration is closed.