29 August 2019

NICE, Level 1, City Tower, Piccadilly Plaza, Manchester, M1 4BT


Final agenda

The meeting will start promptly at 10:00 and is expected to finish at approximately 16:00

Please note that this agenda is subject to change before the meeting.

  1. Welcome and introduction to format of meeting – Part 1 only (open session)
  2. Apologies – Part 1 only (open session)
  3. Any other business – Part 1 only (open session)
  4. Evaluation of Velmanase alfa for treating alpha-mannosidosis [ID800]
            4.1. Declarations of interest – Part 1 only (open session)
            4.2. Introduction by the Chair, Dr Peter Jackson– Part 1 only (open session)
            4.3. Presentation by the Chair, Dr Peter Jackson – Part 1 AND part 2 (open and closed session)
            4.4. Agreement on the content of the Evaluation Consultation Document (ECD) or Final Evaluation Determination (FED)– Part 2 only (closed session)
  5. Evaluation  of Cerliponase alfa for treating neuronal ceroid lipofuscinosis type 2 [ID943] 

        5.1. Declarations of interest – Part 1 only (open session)
        5.2. Introduction by the Chair, Dr Peter Jackson– Part 1 only (open session)
        5.3. Presentation by the Chair, Dr Peter Jackson – Part 1 AND part 2 (open and closed session)
        5.4. Agreement on the content of the Evaluation Consultation Document (ECD) or Final Evaluation Determination (FED)– Part 2 only (closed session)

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Date, time and venue of next meeting

 Next HST Evaluation Meeting: Thursday 31 October 2019, 10:00am, NICE, Level 1, City Tower, Piccadilly Plaza, Manchester, M1 4BT.

How to register

  • Click on the register link below and complete the registration form, selecting the topics you would like to attend.
  • You will receive an automated email response when you submit the registration form. If you do not receive this automated response your registration request has not been received, and you will need to complete and submit the registration form again.
  • Registration will close on Wednesday 28 August 2019Please note that it may not be possible to accept late requests. 
  • Should you have queries regarding attending this meeting, please contact the Meetings in Public Coordinator Sandra Robinson.
  • Registrants wishing to conduct a research study on committee meetings and/or NICE processes will require prior permission. Contact the NICE Enquiry Handling team at nice@nice.org.uk.
  • Further information about conducting research is also available in our common questions and answers about meetings in public document.

 

Registration period: 31 July 2019 to 28 August 2019
Registration is closed.