20 March 2018

NICE, Level 1, City Tower, Piccadilly Plaza, Manchester, M1 4BT

Draft agenda 

Please note this meeting has now been cancelled.

  1. Welcome and introduction to format of meeting – Part 1 only (open session)
  2. Code of conduct for members of the public attending the meeting – Part 1 only (open session)
  3. Apologies – Part 1 only (open session)
  4. Any other business – Part 1 only (open session)
  5. Evaluation of cerliponase alfa for treating neuronal ceroid lipofuscinosis type 2 [ID943]
    • 5.1. Declarations of interest – Part 1 only (open session)
    • 5.2. Introduction by the chair, Dr Peter Jackson – Part 1 only (open session)
    • 5.3. Presentation by the chair, Dr Peter Jackson  Part 1 AND part 2 (open and closed session)
    • 5.4. Agreement on the content of the Evaluation Consultation Document (ECD) or Final Evaluation Determination (FED) – Part 2 only (closed session)

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Date, time and venue of next meeting

The next meeting will take place on Wednesday 24 April 2018, at NICE, Level 1A, City Tower, Piccadilly Plaza, Manchester M1 4BT.

Please note all timings are approximate.

How to register

  • Click on the register link below and complete the registration form, selecting the topics you would like to attend.
  • You will receive an automated email response when you submit the registration form. If you do not receive this automated response your registration request has not been received, and you will need to complete and submit the registration form again.
  • Registration will close on Tuesday 6 March 2018Please note that it may not be possible to accept late requests. 
  • Should you have queries regarding attending this meeting, please contact the Meetings in Public Coordinator, Sandra Robinson.
  • Registrants wishing to conduct a research study on committee meetings and/or NICE processes will require prior permission. Contact the NICE Enquiry Handling team at nice@nice.org.uk.
  • Further information about conducting research is also available in our common questions and answers about meetings in public document.


Registration period: 20 February 2018 to 06 March 2018
Registration is closed.