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Autism spectrum disorder in adults: diagnosis and management [CG142]

Measuring the use of this guidance

Recommendation: 1.1.3

All health and social care professionals providing care and support for adults with autism should have a broad understanding of the: - nature, development and course of autism - impact on personal, social, educational and occupational functioning - impact of and interaction with the social and physical environment - impact on and interaction with other coexisting mental and physical disorders and their management -potential discrepancy between intellectual functioning as measured by IQ and adaptive functioning as reflected, for example, by difficulties in planning and performing activities of daily living including education or employment.

What was measured: Proportion of autistic adult respondents to an online survey who said the social workers they have come into contact with had a good understanding of autism or autistic people's needs.
Data collection end: May 2019
10%
Area covered: UK
Source: All Party Parliamentary Group on Autism. The Autism Act, 10 Years On.

What was measured: Proportion of autistic adult respondents to an online survey who said the support workers they have come into contact with had a good understanding of autism or autistic people's needs.
Data collection end: May 2019
19%
Area covered: UK
Source: All Party Parliamentary Group on Autism. The Autism Act, 10 Years On.

What was measured: Proportion of local authorities which reported providing a comprehensive range of local autism training that meets NICE guidelines to all health and care staff, collecting data on take-up, collecting workforce data from all statutory organisations, identifying gaps, and developing plans to address these.
Data collection end: December 2018
21%
Area covered: England
Source: Public Health England. Autism self-assessment exercise.


Recommendation: 1.1.12

In order to effectively provide care and support for adults with autism, the local autism multi-agency strategy group should include representation from managers, commissioners and clinicians from adult services, including mental health, learning disability, primary healthcare, social care, housing, educational and employment services, the criminal justice system and the third sector. There should be meaningful representation from people with autism and their families, partners and carers.

What was measured: Proportion of local authorities which reported that at least 1 autistic person and 1 family carer regularly attend the autism partnership board and meaningfully contribute.
Data collection end: December 2018
89%
Area covered: England
Source: Public Health England. Autism self-assessment exercise.


Recommendation: 1.8.2

Autism strategy groups should be responsible for developing, managing and evaluating local care pathways. The group should appoint a lead professional responsible for the local autism care pathway. The aims of the strategy group should include: - developing clear policy and protocols for the operation of the pathway - ensuring the provision of multi-agency training about signs and symptoms of autism, and training and support on the operation of the pathway - making sure the relevant professionals (health, social care, housing, educational and employment services and the third sector) are aware of the local autism pathway and how to access services - supporting the integrated delivery of services across all care settings - supporting the smooth transition to adult services for young people going through the pathway - auditing and reviewing the performance of the pathway.

What was measured: Proportion of local authorities which reported having a designated strategic lead for autistic adult services.
Data collection end: December 2018
95%
Area covered: England
Source: Public Health England. Autism self-assessment exercise.

What was measured: Proportion of local authorities which reported having a multi-agency autism training plan in place.
Data collection end: December 2018
48%
Area covered: England
Source: Public Health England. Autism self-assessment exercise.



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