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Idiopathic pulmonary fibrosis in adults: diagnosis and management [CG163]

Measuring the use of this guidance

Recommendation: 1.3.3

An interstitial lung disease specialist nurse should be available at all stages of the care pathway to provide information and support to people with idiopathic pulmonary fibrosis and their families and carers with the person's consent.

What was measured: Proportion of centres with an interstitial lung disease specialist nurse as a member of the interstitial lung disease team.
Data collection end: July 2015
85%
Number that met the criteria: 17 / 20
Area covered: UK
Source: British Thoracic Society. Interstitial Lung Disease Registry Programme.


Recommendation: 1.6.1

In follow-up appointments for people with idiopathic pulmonary fibrosis: assess lung function assess for oxygen therapy assess for pulmonary rehabilitation offer smoking cessation advice, in line with Smoking cessation services (NICE public health guidance 10) identify exacerbations and previous respiratory hospital admissions consider referral for assessment for lung transplantation in people who do not have absolute contraindications (see recommendations 1.5.16 and 1.5.17) consider psychosocial needs and referral to relevant services as appropriate consider referral to palliative care services assess for comorbidities (which may include anxiety, bronchiectasis, depression, diabetes, dyspepsia, ischaemic heart disease, lung cancer and pulmonary hypertension).

What was measured: Proportion of patients who were assessed for oxygen during a follow up appointment.
Data collection end: July 2015
72%
Number that met the criteria: 64 / 87
Area covered: UK
Source: British Thoracic Society. Interstitial Lung Disease Registry Programme.

What was measured: Proportion of patients who were assessed for oxygen during a follow up appointment.
Data collection end: September 2016
96%
Number that met the criteria: 22 / 24
Area covered: UK
Source: British Thoracic Society. Interstitial Lung Disease Registry Programme.



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