Return to NG43 Overview

Transition from children’s to adults’ services for young people using health or social care services [NG43]

Measuring the use of this guidance

Recommendation: 1.1.4

Use person-centred approaches to ensure that transition support: - treats the young person as an equal partner in the process and takes full account of their views and needs - involves the young person and their family or carers, primary care practitioners and colleagues in education, as appropriate - supports the young person to make decisions and builds their confidence to direct their own care and support over time - fully involves the young person in terms of the way it is planned, implemented and reviewed - addresses all relevant outcomes, including those related to: > education and employment > community inclusion > health and wellbeing, including emotional health > independent living and housing options - involves agreeing goals with the young person - includes a review of the transition plan with the young person at least annually or more often if their needs change.

What was measured: Proportion of autistic adult respondents to an online survey who said they were fully involved when they went through the transition to adults' services.
Data collection end: May 2019
36%
Area covered: UK
Source: All Party Parliamentary Group on Autism. The Autism Act, 10 Years On.

What was measured: Proportion of autistic adult respondents to an online survey who believe they were properly supported when they went through transition to adults' services.
Data collection end: May 2019
26%
Area covered: UK
Source: All Party Parliamentary Group on Autism. The Autism Act, 10 Years On.


Recommendation: 1.1.5

Health and social care service managers in children's and adults' services should work together in an integrated way to ensure a smooth and gradual transition for young people. This work could involve, for example, developing: - a joint mission statement or vision for transition - jointly agreed and shared transition protocols, information‑sharing protocols and approaches to practice.

What was measured: Proportion of hospitals which reported having a policy for transition of care from paediatric to adult oncology services.
Data collection end: May 2016
43%
Number that met the criteria: 33 / 77
Area covered: UK
Source: The National Confidential Enquiry into Patient Outcome and Death. Cancer in Children, Teens and Young Adults: On the Right Course?

What was measured: Proportion of hospitals (general or mental health) with a framework to facilitate continuity of patient care at the point of transition from child to adult mental health services.
Data collection end: March 2016
78%
Number that met the criteria: 79 / 101
Area covered: UK
Source: National Confidential Enquiry into Patient Outcome and Death. Mental Healthcare in Young People and Young Adults.

What was measured: Proportion of hospitals with a framework for handover between child and adult services for patients with both physical and mental health needs.
Data collection end: March 2016
45%
Number that met the criteria: 21 / 47
Area covered: UK
Source: National Confidential Enquiry into Patient Outcome and Death. Mental Healthcare in Young People and Young Adults.


Recommendation: 1.2.3

Ensure the transition planning is developmentally appropriate and takes into account each young person's capabilities, needs and hopes for the future. The point of transfer should: - not be based on a rigid age threshold - take place at a time of relative stability for the young person.

What was measured: Proportion of hospitals with on-site mental health services where decisions about when transition to adult mental health services should occur were based primarily on age.
Data collection end: March 2016
91%
Number that met the criteria: 86 / 94
Area covered: UK
Source: National Confidential Enquiry into Patient Outcome and Death. Mental Healthcare in Young People and Young Adults.


Recommendation: 1.3.1

Children's and adults' service managers should ensure that a practitioner from the relevant adult services meets the young person before they transfer from children's services. This could be, for example, by: - arranging joint appointments - running joint clinics - pairing a practitioner from children's services with one from adults' services.

What was measured: The proportion of trusts that had a joint outpatient service for epilepsy that included the presence of both adult and paediatric professionals.
Data collection end: April 2018
53%
Number that met the criteria: 75 / 142
Area covered: National
Source: Royal College of Paediatrics and Child Health. Epilepsy12 national report.


Recommendation: 1.3.4

All children's and adults' services should give young people and their families or carers information about what to expect from services and what support is available to them. This information should be provided early enough to allow young people time to reflect and discuss with parents, carers or practitioners if they want to (for example 3 months before transfer). It should: be in an accessible format, depending on the needs and preferences of the young person (this could include, for example, written information, computer‑based reading programmes, audio or braille formats for disabled young people) - describe the transition process - describe what support is available before and after transfer - describe where they can get advice about benefits and what financial support they are entitled to.

What was measured: Proportion of autistic adult respondents to an online survey who said they received enough information when they went through transition to adults' services.
Data collection end: May 2019
26%
Area covered: UK
Source: All Party Parliamentary Group on Autism. The Autism Act, 10 Years On.


Recommendation: 1.5.1

Each health and social care organisation, in both children's and adults' services supporting young people in transition, should nominate: - one senior executive to be accountable for developing and publishing transition strategies and policies - one senior manager to be accountable for implementing transition strategies and policies.

What was measured: Proportion of hospitals with on-site mental health services which reported having a designated professional lead for transition.
Data collection end: March 2016
48%
Number that met the criteria: 46 / 96
Area covered: UK
Source: National Confidential Enquiry into Patient Outcome and Death. Mental Healthcare in Young People and Young Adults.


Recommendation: 1.5.7

Carry out a gap analysis to identify and respond to the needs of young people who have been receiving support from children's services, including child and adolescent mental health services, but who are not able to get support from adult services. The gap analysis should inform local planning and commissioning of services.

What was measured: Proportion of hospitals, with a transition policy in place, where the policy addressed the issue of what would occur if the patient did not meet the criteria for adult community mental health services.
Data collection end: March 2016
64%
Number that met the criteria: 25 / 39
Area covered: UK
Source: National Confidential Enquiry into Patient Outcome and Death. Mental Healthcare in Young People and Young Adults.



 Return to NG43 Overview