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Cerebral palsy in under 25s: assessment and management [NG62]

Measuring the use of this guidance

Recommendation: 1.5.2

Recognise that children and young people with cerebral palsy and their parents or carers have a central role in decision-making and care planning.

What was measured: Proportion of patients, in the opinion of the case reviewer, who were fully included in all discussions and decision-making about them where possible.
Data collection end: October 2015
50.2%
Number that met the criteria: 139 / 277
Area covered: UK
Source: The National Confidential Enquiry into Patient Outcome and Death. Each and Every Need. 2018. London

What was measured: Proportion of general paediatric teams who report giving parents written information about the diagnosis of cerebral palsy.
Data collection end: October 2015
63%
Number that met the criteria: 51 / 81
Area covered: UK
Source: The National Confidential Enquiry into Patient Outcome and Death. Each and Every Need. 2018. London

What was measured: Proportion of community paediatric teams who report giving parents written information about the diagnosis of cerebral palsy.
Data collection end: October 2015
78.1%
Number that met the criteria: 57 / 73
Area covered: UK
Source: The National Confidential Enquiry into Patient Outcome and Death. Each and Every Need. 2018. London

What was measured: Proportion of patients, in the opinion of the case reviewer, whose preferred communication method had been ascertained.
Data collection end: October 2015
57.8%
Number that met the criteria: 159 / 275
Area covered: UK
Source: The National Confidential Enquiry into Patient Outcome and Death. Each and Every Need. 2018. London


Recommendation: 1.13.5

"When assessing pain in children and young people with cerebral palsy: - recognise that assessing the presence and degree of pain can be challenging, especially if: - there are communication difficulties or learning disability (intellectual disability) - there are difficulties with registering or processing sensory information (see section 1.16) - ask about signs of pain, discomfort, distress and sleep disturbances (see section 1.14) at every contact - recognise that pain-related behaviour can present differently compared with that in the wider population."

What was measured: Proportion of paediatric outpatient organisations with a policy of always asking about the presence of pain at each consultation with a patient with cerebral palsy.
Data collection end: October 2015
36.3%
Number that met the criteria: 29 / 80
Area covered: UK
Source: The National Confidential Enquiry into Patient Outcome and Death. Each and Every Need. 2018. London

What was measured: Proportion of community or disability paediatric organisations with a policy of always asking about the presence of pain at each consultation with a patient with cerebral palsy.
Data collection end: October 2015
41.3%
Number that met the criteria: 33 / 80
Area covered: UK
Source: The National Confidential Enquiry into Patient Outcome and Death. Each and Every Need. 2018. London



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