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Epilepsy in adults [QS26]

Measuring the use of this guidance

Statement: 1

Adults presenting with a suspected seizure are seen by a specialist in the diagnosis and management of the epilepsies within 2 weeks of presentation.

Quality standard measure: Evidence of local arrangements for adults presenting with a suspected seizure to be seen by a specialist in the diagnosis and management of the epilepsies within 2 weeks of presentation.
What was measured: Proportion of adult epilepsy service providers which reported being able to offer a first epilepsy appointment within 2 weeks.
Data collection end: March 2017
8%
Number that met the criteria: 7 / 86
Area covered: UK
Source: Epilepsy Action. Epilepsy health services in the UK.

Quality standard measure: Evidence of local arrangements for adults presenting with a suspected seizure to be seen by a specialist in the diagnosis and management of the epilepsies within 2 weeks of presentation.
What was measured: Proportion of adult epilepsy service providers which reported being able to offer a first seizure clinic appointment within 2 weeks.
Data collection end: March 2017
23%
Number that met the criteria: 15 / 66
Area covered: UK
Source: Epilepsy Action. Epilepsy health services in the UK.


Statement: 2

Adults having initial investigations for epilepsy undergo the tests within 4 weeks of them being requested.

Quality standard measure: Evidence of local arrangements for adults having initial investigations for epilepsy to undergo the tests within 4 weeks of them being requested.
What was measured: Proportion of adult epilepsy service providers which reported having a waiting time for MRI of 4 weeks or less.
Data collection end: March 2017
35%
Number that met the criteria: 30 / 85
Area covered: UK
Source: Epilepsy Action. Epilepsy health services in the UK.

Quality standard measure: Evidence of local arrangements for adults having initial investigations for epilepsy to undergo the tests within 4 weeks of them being requested.
What was measured: Proportion of adult epilepsy service providers which reported having a waiting time for an EEG of 4 weeks or less.
Data collection end: March 2017
18%
Number that met the criteria: 31 / 77
Area covered: UK
Source: Epilepsy Action. Epilepsy health services in the UK.


Statement: 5

Adults with epilepsy are seen by an epilepsy specialist nurse who they can contact between scheduled reviews.

Quality standard measure: Evidence of local arrangements for adults with epilepsy to be seen by an epilepsy specialist nurse who they can contact between scheduled reviews.
What was measured: Proportion of adult epilepsy service providers which reported offering access to an adult epilepsy specialist nurse.
Data collection end: March 2017
93%
Number that met the criteria: 81 / 87
Area covered: UK
Source: Epilepsy Action. Epilepsy health services in the UK.


Statement: 9

Young people with epilepsy have an agreed transition period during which their continuing epilepsy care is reviewed jointly by paediatric and adult services.

Quality standard measure: Evidence of local arrangements for young people with epilepsy to have an agreed transition period during which their continuing epilepsy care is reviewed jointly by paediatric and adult services.
What was measured: Units that provide a handover clinic (a clinic where a young people ‘leaves the paediatric service and joins an adult service’ and comprises both adult and paediatric health professionals)
Data collection end: January 2014
38%
Number that met the criteria: 71 / 186
Area covered: National
Source: Royal College of Paediatrics and Child Health. Epilepsy12 national report.

Quality standard measure: Evidence of local arrangements for young people with epilepsy to have an agreed transition period during which their continuing epilepsy care is reviewed jointly by paediatric and adult services.
What was measured: Proportion of adult epilepsy service providers which reported providing access to a transition clinic.
Data collection end: March 2017
58%
Number that met the criteria: 69 / 118
Area covered: UK
Source: Epilepsy Action. Epilepsy health services in the UK.



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