Quality statement 10: Involvement and contribution to the community

Quality statement

People with dementia are enabled, with the involvement of their carers, to maintain and develop their involvement in and contribution to their community.

Rationale

Giving people with dementia opportunities to be involved in and make a positive contribution to their community supports their ongoing independence, helps maintain their dignity and therefore can substantially improve their feelings of wellbeing.

Quality measure

Structure: Evidence of local arrangements to ensure that people with dementia are enabled, with the involvement of their carers, to maintain and develop their involvement in and contribution to their community.

Outcome:

a) Feedback from people with dementia that they have been able to maintain and develop their involvement in and contribution to their community.

b) Feedback from the carers of people with dementia that the person they support has been able to maintain and develop their involvement in and contribution to their community.

What the quality statement means for each audience

People with dementia can continue to be involved in and contribute to their community.

Carers of people with dementia are involved in helping the person they support to continue to be involved in and contribute to their community.

Local authorities and others commissioning services work with providers to ensure the services they commission enable people with dementia, with the involvement of their carers, to maintain and develop their involvement in and contribution to their community.

Organisations providing care and support enable people with dementia, with the involvement of their carers, to maintain and develop their involvement in and contribution to their community.

Social care staff enable people with dementia, with the involvement of their carers, to maintain and develop their involvement in and contribution to their community.

Source guidance

SCIE guide 15: Social inclusion.

SCIE guide 47: Personalisation – a rough guide.

Data source

Structure: Local data collection.

Outcome: a) and b) Local data collection.

Definitions

Enabled

This refers to local protocols and specific actions contained in those protocols that make sure people with dementia are able to retain contact with their community. Examples of such actions include:

  • helping people to attend community events

  • helping people to take part in community activities

  • helping people to continue everyday activities such as going to shops that they enjoy shopping in

  • supporting people to participate as volunteers in community projects

  • promoting peer support and helping people with dementia to offer advice and pass on tips to those in a similar situation

  • supporting people to continue to vote if they wish to

  • helping people to participate in sponsored events and raise money for other causes

  • helping people to participate in intergenerational projects, for example, history projects and telling local school children about their experiences in years gone by or teaching children to knit

  • encouraging people to talk about their experience of having dementia to local groups, organisations or businesses, and raise awareness of how others can help.

Carers

The Department of Health defines a carer as someone who provides unpaid support to family or friends who couldn't manage without this help, whether they're caring for a relative, partner or friend who is ill, frail, disabled or has mental health or substance misuse problems.

Equality and diversity considerations

Social care and healthcare staff should identify the specific needs of people with dementia and their carers arising from diversity, including gender, sexuality, ethnicity, age and religion. These needs should be recorded in care plans and addressed (NICE clinical guideline 42 recommendations 1.1.1.3 and 1.1.1.5).