Return to QS79 Overview

Idiopathic pulmonary fibrosis in adults [QS79]

Measuring the use of this guidance

Statement: 1

People are diagnosed with idiopathic pulmonary fibrosis only with the consensus of a multidisciplinary team with expertise in interstitial lung disease.

Quality standard measure: Proportion of people diagnosed with idiopathic pulmonary fibrosis by a multidisciplinary team with expertise in interstitial lung disease.
What was measured: Proportion of patients entered onto the idiopathic pulmonary fibrosis registry whose case had been discussed at a multidisciplinary team meeting.
Data collection end: July 2015
93.7%
Number that met the criteria: 476 / 508
Area covered: UK
Source: British Thoracic Society. Interstitial Lung Disease Registry Programme.

Quality standard measure: Proportion of people diagnosed with idiopathic pulmonary fibrosis by a multidisciplinary team with expertise in interstitial lung disease.
What was measured: Proportion of patients entered onto the idiopathic pulmonary fibrosis registry whose case had been discussed at a multidisciplinary team with expertise in interstitial lung disease.
Data collection end: September 2016
92%
Number that met the criteria: 654 / 711
Area covered: UK
Source: British Thoracic Society. Interstitial Lung Disease Registry Programme.

Quality standard measure: Evidence of local arrangements to ensure the availability of a multidisciplinary team with expertise in interstitial lung disease to diagnose idiopathic pulmonary fibrosis.
What was measured: Proportion of district general hospitals which hold multidisciplinary meetings specifically for interstitial lung disease.
Data collection end: July 2015
50%
Number that met the criteria: 3 / 6
Area covered: UK
Source: British Thoracic Society. Interstitial Lung Disease Registry Programme.

Quality standard measure: Evidence of local arrangements to ensure the availability of a multidisciplinary team with expertise in interstitial lung disease to diagnose idiopathic pulmonary fibrosis.
What was measured: Proportion of university/teaching hospitals which hold multidisciplinary meetings specifically for interstitial lung disease.
Data collection end: July 2015
100%
Number that met the criteria: 14 / 14
Area covered: UK
Source: British Thoracic Society. Interstitial Lung Disease Registry Programme.

Quality standard measure: Evidence of local arrangements to ensure the availability of a multidisciplinary team with expertise in interstitial lung disease to diagnose idiopathic pulmonary fibrosis.
What was measured: Proportion of university/teaching hospitals which hold multidisciplinary meetings specifically for interstitial lung disease.
Data collection end: July 2016
100%
Number that met the criteria: 15 / 15
Area covered: UK
Source: British Thoracic Society. Interstitial Lung Disease Registry Programme.

Quality standard measure: Evidence of local arrangements to ensure the availability of a multidisciplinary team with expertise in interstitial lung disease to diagnose idiopathic pulmonary fibrosis.
What was measured: Proportion of district general hospitals which hold multidisciplinary meetings specifically for interstitial lung disease.
Data collection end: July 2016
33.3%
Number that met the criteria: 3 / 9
Area covered: UK
Source: British Thoracic Society. Interstitial Lung Disease Registry Programme.


Statement: 2

People with idiopathic pulmonary fibrosis have an interstitial lung disease specialist nurse available to them.

Quality standard measure: Evidence of local arrangements to ensure that an interstitial lung disease specialist nurse is available to people with idiopathic pulmonary fibrosis at all stages of the care pathway.
What was measured: Proportion of centres with an interstitial lung disease specialist nurse as a member of the interstitial lung disease team.
Data collection end: July 2015
85%
Number that met the criteria: 17 / 20
Area covered: UK
Source: British Thoracic Society. Interstitial Lung Disease Registry Programme.

Quality standard measure: Evidence of local arrangements to ensure that an interstitial lung disease specialist nurse is available to people with idiopathic pulmonary fibrosis at all stages of the care pathway.
What was measured: Proportion of centres with an interstitial lung disease specialist nurse as a member of the interstitial lung disease team.
Data collection end: July 2016
79%
Number that met the criteria: 19 / 24
Area covered: UK
Source: British Thoracic Society. Interstitial Lung Disease Registry Programme.


Statement: 3

People with idiopathic pulmonary fibrosis have an assessment for home and ambulatory oxygen therapy at each follow‑up appointment and before they leave hospital following an exacerbation of the disease.

Quality standard measure: Proportion of idiopathic pulmonary fibrosis follow‑up appointments at which an assessment for home and ambulatory oxygen therapy was made.
What was measured: Proportion of patients who were assessed for oxygen during a follow up appointment.
Data collection end: July 2015
72%
Number that met the criteria: 64 / 87
Area covered: UK
Source: British Thoracic Society. Interstitial Lung Disease Registry Programme.

Quality standard measure: Proportion of idiopathic pulmonary fibrosis follow‑up appointments at which an assessment for home and ambulatory oxygen therapy was made.
What was measured: Proportion of patients who were assessed for oxygen during a follow up appointment.
Data collection end: September 2016
96%
Number that met the criteria: 22 / 24
Area covered: UK
Source: British Thoracic Society. Interstitial Lung Disease Registry Programme.



 Return to QS79 Overview