Information for the public

Regular reviews

You should have regular reviews of your epilepsy and treatment. Usually this is done with your GP, although you may prefer or need to have the review with your specialist.

Children and young people should have their review with a specialist. The specialist should be a doctor who treats and cares for children (a paediatrician) and who has also had special training in diagnosing and treating epilepsy.

You should have a review at least once a year (in children and young people, it may take place as often as once every 3 months). Reviews can take place more often if you prefer or if your epilepsy needs closer attention.

If you continue to have seizures, have side effects from your medication, or need specialist advice (for example, you are a woman and are planning a pregnancy), you should be able to see a specialist or be referred to a specialist centre (see referral to a specialist centre).

What your reviews should cover

At your reviews the healthcare professional should ask whether you are having seizures, how you are getting on with your treatment, and whether you are having side effects or any difficulties taking your medication (for example, remembering when to take it). If there are any problems, they should discuss your treatment plan with you and whether changing medication might help.

During your review you should be offered information about epilepsy (see after your diagnosis) and about voluntary organisations that may be of help to you (for example, organisations that can provide you with more information about epilepsy, or support groups). You should also be offered:

  • an opportunity to see an epilepsy specialist nurse

  • access to counselling services

  • further tests or investigations if you need them

  • referral to a specialist centre if needed.

  • Information Standard