Information for the public

Sudden unexpected death in epilepsy (SUDEP)

Sudden unexpected death in epilepsy (SUDEP)

If a person with epilepsy dies suddenly and no obvious reason can be found after a post-mortem examination has been carried out, it's called sudden unexpected death in epilepsy (or SUDEP for short). Although it's rare, it does happen.

Healthcare professionals should give you and your family or carers information about SUDEP and should discuss with you your individual risk of SUDEP and how to reduce this risk.

If a person has died unexpectedly

If a member of your family, or someone you care for, with epilepsy has died unexpectedly, healthcare professionals should contact you so that you can talk about the death. They should also offer to help you contact a SUDEP support group or bereavement counsellors.

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