Planning your care

Planning your care

Because of the nature of dementia and because your condition may change over time, you may need support from the NHS and social services.

Your care plan should record the support you are to receive from both health and social care staff, and should be agreed between them and you and your carers. The care plan should name the people who will make sure that the plan is followed.

You and your care team should discuss your care plan regularly and make changes to it as your needs change. How often this happens should be agreed with you and your carer.

You and your carer should be given up-to-date advice and written information about the services in your area, including how the NHS and social services (including voluntary services) work together, and how you and your carer can make contact with these services.

You have the right to receive financial support. Your care team should tell you about the types of financial support that are available, which may include:

  • direct payments from social services to pay for help with care

  • attendance allowance

  • disability living allowance.

You should be offered additional help to manage payments and allowances. You and your carer should also be told about the difference between care provided by the NHS and care provided by social services so that you can find out whether you are entitled to NHS Continuing Care.

Questions you might like to ask your health and social care team

  • Please tell me more about dementia.

  • How is dementia likely to affect the things I can and cannot do?

  • Are there any support organisations in my local area?

  • How can I make sure that I receive the right services?

  • Can you provide any information for my family/carers?

  • Where can I find out more about making written instructions about my care and recording my preferred place of care?