Status In progress
Process HST
ID number 927

Provisional Schedule

Committee meeting: 1 23 November 2017
Committee meeting: 2 20 February 2018
Expected publication 23 May 2018

Project Team

Project lead Joanne Ekeledo

Email enquiries

Consultees

Companies sponsors Clinuvel UK
Others Department of Health
  NHS England
  Welsh Government
Patient carer groups British Porphyria Association
Professional groups British Association of Dermatologists
  Royal College of Pathologists
  Royal College of Physicians
  Mark Holland Metabolic Unit (Salford Royal NHS Foundation Trust)

Commentators

General commentators All Wales Therapeutics and Toxicology Centre
  British National Formulary
  Department of Health, Social Services and Public Safety for Northern Ireland
  Healthcare Improvement Scotland
  Welsh Health Specialised Services Committee

Timeline

Key events during the development of the guidance:

Date Update
28 July 2017 Following an update from the company, the first committee meeting for this topic has been rescheduled to allow for an extension to the submission deadline. The first committee meeting will now take place on 23 November 2017. Please note the dates for the second committee meeting and planned publication are unchanged.
17 May 2017 Invitation to participate
17 May 2017 In progress, Topic in evaluation
21 April 2017 Referral

For further information on how we develop guidance, please see our page about NICE highly specialised technologies guidance