Companies sponsors |
PTC Therapeutics (ataluren) |
Others |
• Department of Health |
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• National Commissioning Group for Rare Neuromuscular Disorders |
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• NHS England |
|
• MRC Centre for Neuromuscular Diseases |
|
• Queen Square Centre for Neuromuscular Diseases UCL |
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• Great Ormond Street Hospital |
|
• Cardiff and Vale University Health Board |
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• Abertawe Bro Morgannwg University Health Board |
Patient carer groups |
• Action Duchenne |
|
• Action for Sick Children |
|
• Alex’s Wish |
|
• Arthritis & Musculoskeletal Alliance |
|
• Black Health Agency |
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• Children’s Society |
|
• Contact |
|
• Disability Rights UK |
|
• DMD Pathfinders |
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• Duchenne Family Support Group |
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• Duchenne UK |
|
• Findacure |
|
• Gene People |
|
• Genetic Alliance UK |
|
• Harrison’s Fund |
|
• Joining Jack |
|
• Muscular Dystrophy UK |
|
• South Asian Health Foundation |
|
• Specialised Healthcare Alliance |
|
• Together for Short Lives |
Professional groups |
• Association of Anaesthetists |
|
• Association of Genetic Nurses & Counsellors |
|
• Association of Respiratory Nurses |
|
• Association of Surgeons of Great Britain and Ireland |
|
• British Dietetic Association |
|
• British Institute of Musculoskeletal Medicine |
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• British Orthopaedic Association |
|
• British Paediatric Neurology Association |
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• British Paediatric Respiratory Society |
|
• British Society for Genetic Medicine |
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• British Society of Rehabilitation Medicine |
|
• British Thoracic Society |
|
• Chartered Society for Physiotherapy |
|
• Physiotherapy Pain Association |
|
• Primary Care Respiratory Society |
|
• Royal College of Anaesthetists |
|
• Royal College of General Practitioners |
|
• Royal College of Nursing |
|
• Royal College of Paediatrics and Child Health |
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• Royal College of Pathologists |
|
• Royal College of Physicians |
|
• Royal College of Surgeons |
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• Royal Pharmaceutical Society |
|
• Royal Society of Medicine |
|
• UK Clinical Pharmacy Association |
|
• UK Genetic Testing Network |
Associated public health groups |
• Public Health Wales |
|
• UK Health security Agency |
Comparator companies |
None |
General commentators |
• All Wales Therapeutics and Toxicology Centre |
|
• Allied Health Professionals Federation |
|
• Board of Community Health Councils in Wales |
|
• British National Formulary |
|
• Care Quality Commission |
|
• Department of Health, Social Services and Public Safety for Northern Ireland |
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• Healthcare Improvement Scotland |
|
• Medicines and Healthcare products Regulatory Agency |
|
• National Association of Primary Care |
|
• National Pharmacy Association |
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• NHS Alliance |
|
• NHS Commercial Medicines Unit |
|
• NHS Confederation |
|
• Scottish Medicines Consortium |
|
• Welsh Government |
|
• Welsh Health Specialised Services Committee |
Relevant research groups |
• British Myology Society |
|
• Cochrane Cystic Fibrosis and Genetic Disorders Group |
|
• Cochrane Musculoskeletal Group |
|
• Duchenne Research Fund |
|
• John Walton Centre for Muscular Dystrophy Research (Newcastle University) |
|
• MRC Centre for Neuromuscular Diseases |
|
• MRC Clinical Trials Unit |
|
• North Star Clinical Network |
|
• National Institute for Health Research |
|
• TREAT-NMD |