Companies sponsors |
Novartis Gene Therapies (onasemnogene abeparvovec) |
Others |
Department of Health and Social Care |
|
European Alliance for Newborn Screening in Spinal Muscular Atrophy |
|
NHS England |
Patient carer groups |
Ally Cadence Trust for Spinal Muscular Atrophy |
|
Arthritis and Musculoskeletal Alliance |
|
Beacon |
|
Brain and Spine Foundation |
|
Brain Charity |
|
Contact |
|
Disability Rights UK |
|
Genetic Alliance UK |
|
Leonard Cheshire Disability |
|
Muscular Dystrophy UK |
|
National Children’s Bureau |
|
Neurological Alliance |
|
South Asian Health Foundation |
|
Specialised Healthcare Alliance |
|
Spinal Muscular Atrophy UK (SMA UK) |
|
The Annabelle Rose Foundation for Spinal Muscular Atrophy |
|
Together for Short Lives |
|
TreatSMA |
Professional groups |
Association of Anaesthetists |
|
Association of British Neurologists |
|
Association of Genetic Nurses and Counsellors |
|
Association of Paediatric Anaesthetists of Great Britain and Ireland |
|
Association of Surgeons of Great Britain and Ireland |
|
British Dietetic Association |
|
British Institute of Musculoskeletal Medicine |
|
British Myology Society |
|
British Neuropathological Society |
|
British Orthopaedic Association |
|
British Paediatric Neurology Association |
|
British Society for Children's Orthopaedic Surgery |
|
British Society for Gene and Cell Therapy |
|
British Society for Genetic Medicine |
|
British Society for Human Genetics |
|
British Society of Rehabilitation Medicine |
|
Chartered Society for Physiotherapy |
|
Institute of Neurology |
|
Neonatal & Paediatric Pharmacists Group |
|
Primary Care and Community Neurology Society |
|
Royal College of Anaesthetists |
|
Royal College of General Practitioners |
|
Royal College of Nursing |
|
Royal College of Paediatrics & Child Health |
|
Royal College of Pathologists |
|
Royal College of Physicians |
|
Royal College of Surgeons |
|
Royal Pharmaceutical Society |
|
Royal Society of Medicine |
|
SMA Reach |
|
Treat-NMD |
|
UK Clinical Pharmacy Association |
|
UK Genetic Testing Network |
Associated public health groups |
Public Health Wales |
|
UK Health Security Agency |
Comparator companies |
None |
General commentators |
All Wales Therapeutics and Toxicology Centre |
|
Allied Health Professionals Federation |
|
Board of Community Health Councils in Wales |
|
British National Formulary |
|
Care Quality Commission |
|
Department of Health, Social Services and Public Safety for Northern Ireland |
|
Healthcare Improvement Scotland |
|
Medicines and Healthcare products Regulatory Agency |
|
National Association of Primary Care |
|
National Pharmacy Association |
|
National Services Division |
|
Neurological Alliance of Scotland |
|
NHS Alliance |
|
NHS Confederation |
|
Scottish Medicines Consortium |
|
Wales Neurological Alliance |
|
Welsh Government |
|
Welsh Health Specialised Services Committee |
Relevant research groups |
Cochrane Cystic Fibrosis & Genetic Disorders Group |
|
Cochrane Neuromuscular |
|
Genomics England |
|
John Walton Muscular Dystrophy Research Centre |
|
MRC Centre for Neuromuscular Diseases |
|
MRC Clinical Trials Unit |
|
National Institute for Health Research |