Quality standard

List of quality statements

List of quality statements

Statement 1. Adults diagnosed with motor neurone disease (MND) are given information about the diagnosis, prognosis and management of MND by a consultant neurologist with expertise in treating people with MND.

Statement 2. Adults with MND who have respiratory impairment are offered non‑invasive ventilation (NIV) based on regular assessments of respiratory function and symptoms.

Statement 3. Adults with MND receive tailored equipment and adaptions without delay, based on regular multidisciplinary team assessments.

Statement 4. Adults with MND receive personal care and support from a consistent team of workers who are familiar with their needs.

Statement 5. Adults with MND are given opportunities to discuss their preferences and concerns about end of life care at diagnosis and key stages of disease progression.