Development sources

Evidence sources

The documents below contain clinical guideline recommendations or other recommendations that were used by the TEG to develop the quality standard statements and measures.

National End of Life Care Programme (2011) Draft spiritual support and bereavement care quality markers and measures for end of life care.

NHS National End of Life Programme and National End of Life Care Intelligence Network (2011) End of life care quality assessment tool.

Department of Health (2009) End of life care strategy: quality markers and measures for end of life care.

Improving supportive and palliative care for adults with cancer (2004) NICE cancer service guidance.

Policy context

It is important that the quality standard is considered alongside current policy documents, including:

Department of Health (2011) End of life care strategy: third annual report.

Department of Health (2011) Transparency in outcomes – a framework for quality in adult social care.

Department of Health (2010) The NHS outcomes framework 2011/12.

Department of Health (2010) End of life care strategy: second annual report.

Department of Health (2009) End of life care strategy: first annual report.

Department of Health (2009) End of life care strategy: quality markers and measures for end of life care.

Department of Health (2008) End of life care strategy – promoting high quality care for all adults at the end of life.

NHS National End of Life Care Programme (2008)

Definitions and data sources

References included in the definitions and data sources sections can be found below:

Audit Commission. National indicator set.

Care Quality Commission (2010) Essential standards of quality and safety.

Care Quality Commission (2010) NHS inpatient services survey.

Childhood Bereavement Network. Information resources for children.

Department of Health. Definitions from caring for our future programme.

Department of Health. End of life care for all (e-ELCA).

Department of Health (2011) Transparency in outcomes – a framework for quality in adult social care.

Department of Health (2010) NHS Operating Framework for 2011/12.

Department of Health (2010) Personalisation through person-centred planning.

Department of Health (2010) Prioritising need in the context of putting people first: a whole system approach to eligibility for social care – guidance on eligibility criteria for adult social care, England 2010.

Department of Health (2003) NHS chaplaincy: meeting the religious and spiritual needs of patients and staff.

Dying Matters Coalition. Information resource materials.

General Medical Council (2010) Treatment and care towards the end of life: good practice in decision making.

General Medical Council (2008) Personal beliefs and medical practice.

Gold Standards Framework (2008) Prognostic indicator guidance.

Home Office (2003) Death certification and investigation in England, Wales and Northern Ireland: the report of a fundamental review.

Information Standards Board (2011) Draft end of life care locality register pilot programme core and comprehensive dataset.

Marie Curie Cancer Care (2003) Spiritual and religious care competencies for specialist palliative care.

Marie Curie Palliative Care Institute Liverpool. Information resources for children.

National Cancer Peer Review Programme (2011) Manual for Cancer Services: psychological support.

National Cancer Peer Review Programme (2011) Manual for Cancer Services: rehabilitation.

National Council for Palliative Care. Minimum data set (MDS) for specialist palliative care services.

National Council for Palliative Care (2009) Specialist palliative care workforce survey 2009.

National End of Life Care Intelligence Network (2011) Predicting death: estimating the proportion of deaths that are 'unexpected'.

NHS National End of Life Care Programme. End of life care needs assessment pathway.

NHS National End of Life Care Programme (2011) Capacity, care planning and advance care planning in life limiting illness.

NHS National End of Life Care Programme (2011) End of life locality registers evaluation: final report.

NHS National End of Life Care Programme (2011) Guidance for staff responsible for care after death (last offices).

NHS National End of Life Care Programme (2011) Quick guide to identifying patients for supportive and palliative care.

NHS National End of Life Care Programme (2011) Talking about end of life care: right conversations, right people, right time.

NHS National End of Life Care Programme (2011) When a patient dies: guidance for professionals on developing bereavement services.

NHS National End of Life Care Programme (2010) Holistic common assessment of supportive and palliative care needs for adults requiring end of life care.

NHS National End of Life Care Programme (2010) Supporting people to live and die well: a framework for social care at the end of life.

National End of Life Care Programme/Department of Health/Skills for Care/Skills for Health (2010) A framework of national occupational standards to support common core competences and principles for health and social care workers working with adults at the end of life.

NHS Scotland. Supportive and Palliative Care Indicator tool.

NHS Scotland (2007) Standards for NHS Scotland chaplaincy services.

Office for National Statistics (2011) National bereavement survey.

QOF clinical indicators are available from www.qof.ic.nhs.uk. Full QOF guidance available from www.nhsemployers.org

Royal College of General Practitioners (2011) Supporting carers: an action guide for general practitioners and their teams (second edition).

Royal College of General Practitioners (2011) Urgent and emergency care clinical audit toolkit.

Royal College of Physicians. National care of the dying audit – hospitals.

Royal College of Physicians (2008) Consultant physicians working for patients: the duties, responsibilities and practice of physicians in medicine fifth edition.

Social Care Institute for Excellence. Hub where information, resources and links are gathered together to support social care practitioners working with people and their families at the end of life. Available from www.scie.org.uk

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