Quality statement 12: Information provision

Quality statement

Children and young people who have had bacterial meningitis or meningococcal septicaemia, and/or their parents and carers, are given information before discharge about the disease, its potential long-term effects and how to access further support.

Quality measure

Structure: Evidence of local arrangements for children and young people who have had bacterial meningitis or meningococcal septicaemia, or their parents and carers, to be given information before discharge about the disease, its potential long-term effects and how to access further support.

Process: Proportion of children and young people who have had bacterial meningitis or meningococcal septicaemia, or their parents or carers, who receive information before discharge about the disease, its potential long-term effects and how to access further support.

Numerator – the number of people in the denominator or their parents or carers who receive information before discharge about the disease, its potential long-term effects and how to access further support.

Denominator – the number of children and young people who have had bacterial meningitis or meningococcal septicaemia.

Outcome: Patient and/or parent or carer satisfaction with information received before discharge.

What the quality statement means for different audiences

Service providers ensure systems are in place for children and young people who have had bacterial meningitis or meningococcal septicaemia, and/or their parents and carers, to be given information before discharge about the disease, its potential long-term effects and how to access further support.

Healthcare professionals give information before discharge to children and young people who have had bacterial meningitis or meningococcal septicaemia and/or their parents and carers about the disease, its potential long-term effects and how to access further support.

Commissioners ensure they commission services for children and young people who have had bacterial meningitis or meningococcal septicaemia, and/or their parents and carers, to be given information before discharge about the disease, its potential long-term effects and how to access further support.

Children and young people who have had bacterial meningitis or meningococcal septicaemia (blood poisoning), and/or their parents and carers, are given information before leaving hospital about the disease, its potential long-term effects and how to access further support.

Source guidance

Meningitis (bacterial) and meningococcal septicaemia in under 16s: recognition, diagnosis and management (2010) NICE guideline CG102, recommendations 1.5.1 and 1.5.2

Data source

Structure: Local data collection.

Process: Local data collection.

Outcome: Local data collection.

Definitions

Further support

Further support can be provided for children and young people who have had bacterial meningitis or meningococcal septicaemia, and their parents or carers by the GP, or hospital paediatrician and by patient support organisations, including meningitis charities that can offer support, befriending, in-depth information, advocacy, counselling, and written information to signpost families to further help.

[NICE's guideline on meningitis (bacterial) and meningococcal septicaemia in under 16s, recommendation 1.5.2]