Quality statement 9: Transition from children's to adult services

Quality statement

Young people with epilepsy have an agreed transition period during which their continuing epilepsy care is reviewed jointly by paediatric and adult services.

Rationale

The need for continuity of care during transition from paediatric to adult services is particularly important for young people managing the physical and mental transition from adolescence to adulthood. Good management of this transition period by healthcare professionals is vital to develop and maintain the self-esteem and confidence of the adolescent with epilepsy. It also provides an important opportunity to review the diagnosis, classification, cause and management of a young person's epilepsy before they enter adulthood.

Quality measure

Structure: Evidence of local arrangements for young people with epilepsy to have an agreed transition period during which their continuing epilepsy care is reviewed jointly by paediatric and adult services.

Process:

Proportion of young people with epilepsy who are being discharged from paediatric epilepsy services who had an agreed transition period between paediatric and adult services.

Numerator – the number of people in the denominator who had an agreed transition period between paediatric and adult services.

Denominator – the number of young people with epilepsy who are no longer being cared for by paediatric services.

Outcome: Young people's experience of transition to adult services.

What the quality statement means for each audience

Service providers ensure systems are in place for young people with epilepsy to have an agreed transition period during which their continuing epilepsy care is reviewed jointly by paediatric and adult services.

Healthcare professionals ensure young people with epilepsy have an agreed transition period during which their continuing epilepsy care is reviewed jointly by paediatric and adult services.

Commissioners ensure they commission services for young people with epilepsy to have an agreed transition period during which their continuing epilepsy care is reviewed jointly by paediatric and adult services.

Young people with epilepsy who are changing over from children's to adult healthcare services have a period of time when they are supported by both children's and adult services so that the changeover is handled smoothly.

Source guidance

NICE clinical guideline 137 recommendation 1.17.5.

Data source

Structure: Contained within the Epilepsy12 national audit.

Process: a) and b) Local data collection.

Outcome: Local data collection.

Definitions

The purpose of the joint review is to optimise care and treatment for young people with epilepsy and help their move into adult services.

The period of transition should be a joint clinical action between paediatric and adults services, with at least 1 meeting at a joint consultation and a clear action plan for conducting a review after the young person has transferred into adult services.

Equality and diversity considerations

People with learning disabilities might need a longer transition period to accommodate the additional complexity of their clinical and psychological needs. In addition, people with learning disabilities might remain in paediatric services for longer than those without learning disabilities, depending on their personal preferences, ability to manage their own condition and clinical needs.