Quality statement 1: Discussing concerns about possible dementia

Quality statement

People worried about possible dementia in themselves or someone they know can discuss their concerns, and the options of seeking a diagnosis, with someone with knowledge and expertise.

Rationale

Giving people the opportunity to discuss concerns about whether they, or someone they know, may have symptoms of dementia can help them make informed decisions about what steps they may want to take next. 

Quality measure

Structure: Evidence of local arrangements to ensure people worried about possible dementia in themselves or someone they know can discuss their concerns, and the options of seeking a diagnosis, with someone with knowledge and expertise.

What the quality statement means for each audience

People worried about possible dementia in themselves or someone they know can discuss their concerns, and what having dementia confirmed might mean, with someone with knowledge and expertise.

Local authorities and others commissioning services work with providers to ensure the services they commission have people with knowledge and expertise who can discuss concerns, and the options of seeking a diagnosis, with people worried about possible dementia in themselves or someone they know.

Organisations providing care and support ensure staff with knowledge and expertise can discuss with people worried about possible dementia in themselves or someone they know concerns and the options of seeking a diagnosis.

Social care and healthcare staff with knowledge and expertise ensure they give people worried about possible dementia in themselves or someone they know the opportunity to discuss concerns and the options of seeking a diagnosis.

Source guidance

SCIE guide 15: Communication.

Data source

Structure: Local data collection.

Definitions

People with knowledge and expertise

This could include, but should not be limited to:

  • GPs

  • voluntary and community groups

  • care home managers

  • home care managers.

Equality and diversity considerations

Services should be aware of the special needs of younger people with dementia and people with learning disabilities (NICE clinical guideline 42 recommendation 1.1.2.1, 1.1.3.1 and 1.1.3.1).

NICE clinical guideline 42 recommendation 1.1.1.7 lists alternative and additional support that may be needed if language or acquired language impairment is a barrier to accessing or understanding support.

Social care and healthcare staff should identify the specific needs of people with dementia and their carers arising from diversity, including gender, sexuality, ethnicity, age and religion. These needs should be recorded in care plans and addressed (NICE clinical guideline 42 recommendations 1.1.1.3 and 1.1.1.5).