Quality statement 8: Planning and evaluating services

Quality statement

People with dementia have opportunities, with the involvement of their carers, to participate in and influence the design, planning, evaluation and delivery of services.

Rationale

Person-centred services need to ensure that the people using them have opportunities to shape how services are delivered, what improvements should be made and how best to make those improvements.

Quality measure

Structure: Evidence of local arrangements to ensure people with dementia have opportunities, with the involvement of their carers, to participate in and influence the design, planning, evaluation and delivery of services.

Outcome:

a) Feedback from people with dementia that they participate in the design, planning, evaluation and delivery of services.

b) Feedback from the carers of people with dementia that the person they support participates in the design, planning, evaluation and delivery of services.

What the quality statement means for each audience

People with dementia are given the opportunity to be involved in and influence the design, planning, evaluation and delivery of services.

Carers of people with dementia help the person they support to participate in and influence the design, planning, evaluation and delivery of services.

Local authorities and others commissioning services work with providers to ensure the services they commission give people with dementia, with the involvement of their carers, opportunities to participate in and influence the design, planning, evaluation and delivery of services.

Organisations providing care and support ensure people with dementia are given, with the involvement of their carers, opportunities to participate in and influence the design, planning, evaluation and delivery of services.

Social care and healthcare staff ensure they give people with dementia, with the involvement of their carers, opportunities to participate in and influence the design, planning, evaluation and delivery of services.

Source guidance

NICE clinical guideline 42 recommendation 1.2.1.2.

SCIE guide 15: Choice and control.

Data source

Structure: Local data collection.

Outcome: a) and b) Local data collection.

Definitions

Carers

The Department of Health defines a carer as someone who provides unpaid support to family or friends who couldn't manage without this help, whether they're caring for a relative, partner or friend who is ill, frail, disabled or has mental health or substance misuse problems.

Participate and influence

In this statement, 'participate and influence' refers to people having opportunities to participate in initiatives and also being able to influence how the initiatives are delivered. For example, people with dementia should participate in a service evaluation, but also should have opportunities to influence how the evaluation is conducted and what aspects of a service are being evaluated and what a positive outcome should be.

Equality and diversity considerations

Social care and healthcare staff should identify the specific needs of people with dementia and their carers arising from diversity, including gender, sexuality, ethnicity, age and religion. These needs should be recorded in care plans and addressed (NICE clinical guideline 42 recommendations 1.1.1.3 and 1.1.1.5).