Quality statement 5: Encouraging parental involvement in care

Quality statement

Parents of babies receiving specialist neonatal care are encouraged and supported to be involved in planning and providing care for their baby, and regular communication with clinical staff occurs throughout the care pathway.

Quality measure

Structure:

a) Evidence of local arrangements to involve parents in decision-making processes.

b) Evidence of local audit demonstrating active involvement of parents in providing care for their baby.

c) Evidence of regular surveys on parent experience.

d) Evidence of local arrangements to provide bereavement services.

e) Evidence of local arrangements to provide palliative care.

Process: Parents' experience is monitored through satisfaction surveys and the evidence used to inform learning and change for improvement.

What the quality statement means for each audience

Service providers ensure a policy is in place to maintain accurate records of communication with parents of babies receiving specialist neonatal care and that parents are involved in planning and providing care. Ensure plans are in place to seek regular parental views and experience.

Healthcare professionals communicate regularly with parents of babies receiving specialist neonatal care and ensure parents are involved in decision-making and their baby's care.

Commissioners ensure services use parental feedback on involvement in decision-making and planning and provision of care to inform service improvement of specialist neonatal care.

Parents of babies receiving specialist neonatal care can expect to be encouraged and supported to be actively involved in planning and providing care, joint decision-making and to be in regular contact with their healthcare team.

Definitions

Support provided will depend on the parents needs and may include physical, psychological or social support.

Data source

Structure:

a) and b) Local data collection. Contained within the Picker Institute Europe's neonatal survey.

c) Royal College of Paediatrics and Child Health National Neonatal Audit Programme denominator survey Question 8: In the last 12 months has the unit carried out a parent satisfaction survey?

d) and e) Local data collection.

Process: A Picker Institute parent survey, developed in conjunction with Bliss, is in development and will contain questions specifically aimed at assessing parent involvement in care and decision-making.