Quality statement 9: Health outcomes

Quality statement

Babies receiving specialist neonatal care have their health outcomes monitored.

Quality measure

Structure: Evidence of processes to enable collection of health outcome data within the network for babies who receive specialist neonatal care.

Process:

a) Proportion of babies born at less than 30 weeks of gestation who received specialist neonatal care who have a 2-year outcome form completed.

Numerator – the number of babies with a completed 2-year outcome form.

Denominator – the number of babies born at less than 30 weeks of gestation receiving specialist neonatal care.

b) Proportion of babies born at 30 weeks of gestation or more who received specialist neonatal care who have a 2-year outcome form completed.

Numerator – the number of babies with a completed 2-year outcome form.

Denominator – the number of babies born at 30 weeks of gestation or more receiving specialist neonatal care.

c) Proportion of babies born at less than 32 weeks of gestation and/or with a birth weight less than 1501 g who receive specialist neonatal care and undergo retinopathy screening prior to discharge from hospital.

Numerator – the number of babies undergoing retinopathy screening prior to discharge from hospital.

Denominator – the number of babies born at less than 32 weeks of gestation and/or with a birth weight less than 1501 g, receiving specialist neonatal care and discharged from hospital.

d) Proportion of babies born at less than 32 weeks of gestation and/or with a birth weight less than 1501 g who receive specialist neonatal care who require laser surgery.

Numerator – the number of babies requiring laser surgery.

Denominator – the number of babies born at less than 32 weeks of gestation and/or with a birth weight less than 1501 g receiving specialist neonatal care.

e) Proportion of babies who received specialist neonatal care who have had a culture-positive infection of blood or cerebrospinal fluid prior to discharge from hospital.

Numerator – the number of babies who have had a culture-positive infection of blood or cerebrospinal fluid prior to discharge from hospital.

Denominator – the number of babies receiving specialist neonatal care.

f) Proportion of babies who have had neonatal encephalopathy.

Numerator and denominator under development for the National Neonatal Audit Programme.

Outcomes: a) Proportion of babies born at less than 30 weeks of gestation who receive specialist neonatal care who have no functional impairment at 2 years when corrected for gestational age.

Numerator – the number of babies with no functional impairment at 2 years when corrected for gestational age.

Denominator – the number of babies born at less than 30 weeks of gestation receiving specialist neonatal care.

b) Proportion of babies born at 30 weeks of gestation or more who receive specialist neonatal care who have no functional impairment at 2 years when corrected for gestational age.

Numerator – the number of babies with no functional impairment at 2 years when corrected for gestational age.

Denominator – the number of babies born at 30 weeks of gestation or more receiving specialist neonatal care.

c) 2-year survival rates within and compared with other networks.

What the quality statement means for each audience

Service providers ensure the health outcomes of all babies receiving specialist neonatal care are monitored.

Healthcare professionals ensure accurate and complete baseline data collection through pregnancy, childbirth and the perinatal period.

Commissioners and networks ensure specialist neonatal care health outcomes are monitored and used to inform service improvement.

Parents of babies receiving specialist neonatal care can expect their baby's health will continue to be assessed after discharge from hospital.

Data source

Structure: Royal College of Paediatrics and Child Health Health National Neonatal Audit Programme collects data on whether health outcomes are collected.

Process:

a) and b) Royal College of Paediatrics and Child Health National Neonatal Audit Programme collects data on whether 2-year outcomes are collected.

c) Royal College of Paediatrics and Child Health National Neonatal Audit Programme collects data on retinopathy screening prior to discharge from hospital for babies born at less than 32 weeks or gestation and/or with a birth weight less than 1501 g.

d) Local and network data collection.

e) Royal College of Paediatrics and Child Health National Neonatal Audit Programme will collect data on babies who have had a culture-positive infection of blood or cerebrospinal fluid prior to discharge.

f) Royal College of Paediatrics and Child Health National Neonatal Audit Programme will collect data on neonatal encephalopathy.

Outcomes:

a) and c) Network data collection.

b) Network data collection. Also contained within the Royal College of Paediatrics and Child Health National Neonatal Audit Programme.