The committee meeting for this evaluation will now be held on Thursday 15 August 2024.
NICE received multiple requests from stakeholders to move the date of the committee meeting from 5 September 2024. The September meeting date clashes with the only international meeting a year for people with inherited metabolic disorders, the Society for the Study of Inborn Errors of Metabolism (SSIEM) conference. The decision to move the meeting was made to ensure the evaluation committee have input from the clinical and patient communities at the committee meeting.