Following the 2nd appraisal committee meeting for nusinersen on Tuesday 23 October, we advised registered stakeholders that NICE and Biogen were continuing to progress discussions and that we are not in a position to provide the outcome of the committee’s deliberations.
We wish to reiterate to all stakeholders and the wider SMA community that these discussions remain ongoing. We recognise that this continuing uncertainty will be concerning for the community but please be assured that NICE are committed to swiftly progressing discussions with Biogen and NHS England and we will keep all those involved up to date with progress as soon as there is something to report.