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Eliglustat for treating type 1 Gaucher disease (HST5)

Evidence-based recommendations on eliglustat (Cerdelga) for treating type 1 Gaucher disease in adults

Highly specialised technologies guidance Published June 2017

Asfotase alfa for treating paediatric-onset hypophosphatasia (HST6)

Evidence-based recommendations on asfotase alfa (Strensiq) for treating paediatric-onset hypophosphatasia in adults and children

Highly specialised technologies guidance Published August 2017

Migalastat for treating Fabry disease (HST4)

Evidence-based recommendations on migalastat (Galafold) for treating Fabry disease in people over 16

Highly specialised technologies guidance Published February 2017

Voretigene neparvovec for treating inherited retinal dystrophies caused by RPE65 gene mutations (HST11)

Evidence-based recommendations on voretigene neparvovec (Luxturna) for RPE65-mediated inherited retinal dystrophies (confirmed biallelic RPE65 gene mutations)

Highly specialised technologies guidance Published October 2019

Strimvelis for treating adenosine deaminase deficiency–severe combined immunodeficiency (HST7)

Evidence-based recommendation on Strimvelis for adenosine deaminase deficiency–severe combined immunodeficiency (ADA–SCID)

Highly specialised technologies guidance Published February 2018

Patisiran for treating hereditary transthyretin amyloidosis (HST10)

Evidence-based recommendations on patisiran (Onpattro) for treating hereditary transthyretin amyloidosis in adults with stage 1 and stage 2 polyneuropathy

Highly specialised technologies guidance Published August 2019

Inotersen for treating hereditary transthyretin amyloidosis (HST9)

Evidence-based recommendations on inotersen (Tegsedi) for stage 1 and stage 2 polyneuropathy in adults with hereditary transthyretin amyloidosis

Highly specialised technologies guidance Published May 2019

Burosumab for treating X-linked hypophosphataemia in children and young people (HST8)

Evidence-based recommendations on burosumab (Crysvita) for treating X-linked hypophosphataemia (XLH) in children and young people

Highly specialised technologies guidance Published October 2018

Atrial fibrillation (QS93)

This quality standard covers identifying and managing atrial fibrillation (including paroxysmal, persistent and permanent atrial fibrillation, and atrial flutter) in adults (aged 18 and over). It describes high-quality care in priority areas for improvement.

Quality standard Published July 2015 Last updated February 2018

Heavy menstrual bleeding (QS47)

This quality standard covers assessing and managing heavy menstrual bleeding (also called menorrhagia or heavy periods). It includes assessment, diagnosis, and drug and surgical treatment options, including treatments for uterine fibroids associated with heavy menstrual bleeding. It describes high-quality care in priority areas for improvement.

Quality standard Published September 2013 Last updated March 2018

Falls in older people (QS86)

This quality standard covers prevention of falls and assessment after a fall in older people (aged 65 and over) who are living in the community or staying in hospital. It describes high-quality care in priority areas for improvement.

Quality standard Published March 2015 Last updated January 2017

Chronic heart failure in adults (QS9)

This quality standard covers assessing, diagnosing and managing chronic heart failure in adults (aged 18 and over). It describes high-quality care in priority areas for improvement.

Quality standard Published June 2011 Last updated September 2018

Venous thromboembolism in adults: reducing the risk in hospital (QS3)

This quality standard covers reducing the risk of venous thromboembolism (VTE) in adults who are in hospital. VTE includes deep vein thrombosis (DVT) and pulmonary embolism. It covers people admitted as inpatients and those admitted to a hospital bed as day-case patients, including women who are pregnant and women after childbirth. It describes high-quality care in priority areas for improvement.

Quality standard Published June 2010 Last updated March 2018

Renal replacement therapy services for adults (QS72)

This quality standard covers renal replacement therapy services for adults with kidney failure. It includes treatment options, such as dialysis and kidney transplant. It describes high-quality care in priority areas for improvement.

Quality standard Published November 2014 Last updated October 2018

Hip fracture in adults (QS16)

This quality standard covers diagnosing and managing hip fracture in adults (aged 18 and over). It describes high-quality care in priority areas for improvement.

Quality standard Published March 2012 Last updated May 2017

Learning disability: behaviour that challenges (QS101)

This quality standard covers care and support and services for children, young people and adults with a learning disability (or a learning disability and autism) and behaviour that challenges, and their families and carers. It describes high quality care in priority areas for improvement.

Quality standard Published October 2015 Last updated July 2019

Intrapartum care (QS105)

This quality standard covers the care of women and their babies during labour and immediately after the birth. It covers women who go into labour at term, and includes women at low risk of complications during labour and those who go on to develop complications. It describes high-quality care in priority areas for improvement.

Quality standard Published December 2015 Last updated February 2017

End of life care for adults (QS13)

This quality standard covers care for adults (aged 18 and over) who are approaching the end of their life. This includes people who are likely to die within 12 months, people with advanced, progressive, incurable conditions and people with life-threatening acute conditions. It also covers support for their families and carers. It includes care provided by health and social care staff in all settings. It describes high-quality care in priority areas for improvement.

Quality standard Published November 2011 Last updated March 2017

Patient experience in adult NHS services (QS15)

This quality standard covers improving the quality of the patient experience for people who use adult NHS services. It describes high-quality care in priority areas for improvement.

Quality standard Published February 2012 Last updated July 2019

Service user experience in adult mental health services (QS14)

This quality standard covers improving the experience of people using adult NHS mental health services. It describes high-quality care in priority areas for improvement.

Quality standard Published December 2011 Last updated July 2019

Hypertension in pregnancy (QS35)

This quality standard covers diagnosing and managing hypertension (high blood pressure) and pre-eclampsia during pregnancy, labour and birth. It also covers advice for women with hypertension who may become pregnant and postnatal care for women who have had hypertension or pre-eclampsia. It describes high-quality care in priority areas for improvement.

Quality standard Published July 2013 Last updated July 2019

Trauma (QS166)

This quality standard covers assessing and managing trauma (complex fractures, non-complex fractures, major trauma and spinal injury) in adults, young people and children. It describes high-quality care in priority areas for improvement.

Quality standard Published March 2018

Drug misuse prevention (QS165)

This quality standard covers the prevention or delay of harmful use of drugs by children, young people and adults most likely to start using drugs, or already experimenting or using drugs occasionally. This includes illegal psychoactive substances, solvents, volatile substances, image- and performance-enhancing drugs, prescription-only medicines and over-the-counter medicines. It describes high-quality care in priority areas for improvement.

Quality standard Published March 2018

Endometriosis (QS172)

This quality standard covers diagnosing and managing endometriosis in women, including young women aged 17 and under. It describes high-quality care in priority areas for improvement.

Quality standard Published August 2018

Medicines management for people receiving social care in the community (QS171)

This quality standard covers assessing if people need help with their medicines and deciding what medicines support is needed to enable people to manage their medicines. It also includes communication between health and social care staff, to ensure people have the medicines support they need. It describes high-quality care in priority areas for improvement.

Quality standard Published July 2018

Intermediate care including reablement (QS173)

This quality standard covers referral and assessment for intermediate care and how to deliver the service. It covers bed-based intermediate care, crisis response, home-based intermediate care and reablement. It describes high-quality care in priority areas for improvement. It does not cover rehabilitation for specific conditions.

Quality standard Published August 2018

Developmental follow-up of children and young people born preterm (QS169)

This quality standard covers the developmental follow-up of babies, children and young people under 18 years who were born preterm (before 37+0 weeks of pregnancy). It describes high-quality care in priority areas for improvement.

Quality standard Published May 2018

Cystic fibrosis (QS168)

This quality standard covers diagnosing and managing cystic fibrosis in infants, children, young people and adults. It describes high-quality care in priority areas for improvement.

Quality standard Published May 2018

Promoting health and preventing premature mortality in black, Asian and other minority ethnic groups (QS167)

This quality standard covers promoting health and preventing premature mortality among black, Asian and other minority ethnic groups. It is relevant to all age groups and all settings.

Quality standard Published May 2018

Suspected cancer (QS124)

This quality standard covers the investigation and recognition of suspected cancer, and referral to specialist cancer services for adults, young people and children. It describes high-quality care in priority areas for improvement.

Quality standard Published June 2016 Last updated December 2017

Mental wellbeing and independence for older people (QS137)

This quality standard covers interventions to maintain and improve the mental wellbeing and independence of people aged 65 or older, and how to identify those at risk of a decline. It describes high-quality care in priority areas for improvement. It does not cover the mental wellbeing and independence of people who live in a care home or attend one on a day-only basis.

Quality standard Published December 2016

Oral health promotion in the community (QS139)

This quality standard covers activities undertaken by local authorities and general dental practices to improve oral health. It particularly focuses on people at high risk of poor oral health or who find it difficult to use dental services. It describes high-quality care in priority areas for improvement.

Quality standard Published December 2016

Blood transfusion (QS138)

This quality standard covers the general principles of blood transfusion in adults, young people and children over 1 year old. It describes high-quality care in priority areas for improvement. It does not cover specific conditions that blood transfusion is used for.

Quality standard Published December 2016

Transition from children's to adults' services (QS140)

This quality standard covers the period before, during and after a young person moves from children's to adults' services in all settings where transitions from children’s to adults’ health or social care services take place. It covers all young people (aged up to 25) using children’s health and social care services who are due to make the transition to adults’ services. This includes young people with mental health problems, disabilities and long-term, life-limiting or complex needs, and those in secure settings or under the care of local authorities. It describes high-quality care in priority areas for improvement.

Quality standard Published December 2016

Menopause (QS143)

This quality standard covers diagnosing and managing menopause in women, including women who have premature ovarian insufficiency (menopause before the age of 40, which can occur naturally or as a result of medical or surgical treatment). It describes high-quality care in priority areas for improvement.

Quality standard Published February 2017

Tuberculosis (QS141)

This quality standard covers preventing, identifying and managing latent and active tuberculosis (TB) in children, young people and adults. It describes high-quality care in priority areas for improvement. It does not cover areas of national policy, such as the UK Bacillus Calmette-Guérin (BCG) immunisation programme.

Quality standard Published January 2017

Community engagement: improving health and wellbeing (QS148)

This quality standard covers community engagement approaches to improve health and wellbeing and reduce health inequalities, and initiatives to change behaviours that harm people’s health. This includes building on the strengths and capabilities of communities, helping them to identify their needs and working with them to design and deliver initiatives and improve equity.

Quality standard Published March 2017

Rheumatoid arthritis in over 16s (QS33)

This quality standard covers the diagnosis and management of rheumatoid arthritis in adults (aged 16 and older). It describes high-quality care in priority areas for improvement.

Quality standard Published June 2013 Last updated July 2018

Chronic kidney disease in adults (QS5)

This quality standard covers the assessment and management of chronic kidney disease in adults (aged 18 and over). It describes high-quality care in priority areas for improvement.

Quality standard Published March 2011 Last updated July 2017

Violent and aggressive behaviours in people with mental health problems (QS154)

This quality standard covers short-term prevention and management of violent and physically threatening behaviour among adults, children and young people with a mental health problem. It applies to settings where mental health, health and social care services are provided. This includes community settings and care received at home. It describes high-quality care in priority areas for improvement.

Quality standard Published June 2017

Multimorbidity (QS153)

This quality standard covers clinical assessment, prioritising and managing healthcare for adults aged 18 years and over with 2 or more long-term health conditions (multimorbidity). At least 1 of these conditions must be a physical health condition. It describes high-quality care in priority areas for improvement.

Quality standard Published June 2017

Liver disease (QS152)

This quality standard covers identifying, assessing and managing chronic liver disease in children, young people and adults, and cirrhosis in young people and adults. It describes high-quality care in priority areas for improvement.

Quality standard Published June 2017

Osteoporosis (QS149)

This quality standard covers managing osteoporosis in adults (aged 18 and over), including assessing risk and preventing fragility fractures. It describes high-quality care in priority areas for improvement.

Quality standard Published April 2017

Healthy workplaces: improving employee mental and physical health and wellbeing (QS147)

This quality standard covers the health and wellbeing of all employees, including their mental health. It describes high-quality care in priority areas for improvement. It does not cover managing long-term sickness absence.

Quality standard Published March 2017

Head and neck cancer (QS146)

This quality standard covers assessing, diagnosing and managing head and neck cancer, including cancer of the upper aerodigestive tract in people aged 16 and over. It describes high-quality care in priority areas for improvement.

Quality standard Published March 2017

Vaccine uptake in under 19s (QS145)

This quality standard covers increasing vaccine uptake among children and young people aged under 19 in groups and settings that have low immunisation coverage. It describes high-quality care in priority areas for improvement.

Quality standard Published March 2017

Care of dying adults in the last days of life (QS144)

This quality standard covers the clinical care of adults (aged 18 and over) who are dying, during the last 2 to 3 days of life. It describes high-quality care in priority areas for improvement.

Quality standard Published March 2017

Learning disability: identifying and managing mental health problems (QS142)

This quality standard covers the prevention, assessment and management of mental health problems in people with learning disabilities in all settings (including health, social care, education, and forensic and criminal justice). It also covers family members, carers and care workers.

Quality standard Published January 2017

Transition between inpatient hospital settings and community or care home settings for adults with social care needs (QS136)

This quality standard covers admissions into, and discharge from, inpatient hospital settings for adults (aged 18 years and over) with social care needs. It describes high-quality care in priority areas for improvement. It does not cover inpatient mental health settings, which will be covered by a quality standard on transition between inpatient mental health settings and community or care home settings.

Quality standard Published December 2016