A patient-led project aimed to provide effective on going voice therapy to a large number of people who have a chronic degenerative neurological disorder.
Guidance the shared learning relates to:
Does the example relate to a general implementation of all NICE guidance?
Does the example relate to a specific implementation of a specific piece of NICE guidance?
Aims and objectives
Parkinson's is known to affect the voice in at least 50% of people. Speech Therapy Services in the NHS are limited by the number of therapists available. This patient-led project aimed to provide effective on going voice therapy to a large number of people who have a chronic degenerative neurological disorder. The group is patient led but supported by the PCT. 1. Provision of ongoing effective voice therapy to an unlimited number of people with Parkinson's voice problems. 2. Provision of a patient led project, allowing recognised expert patient input into health care. 3. Means of active support between people with Parkinson's which may improve quality of life.
Reasons for implementing your project
SaLT is available to individuals for a ltd number of sessions. There is six month waiting list and pts are expected to be motivated to carry out speech exercises at home. A patient came up with the idea that singing might help voice problems. The Speech Therapist worked with a professional singing teacher to produce a structured session of voice exercises and song singing. Speech therapists measured pts voices every 6 months throughout the project. The pts also completed a validated Quality of life questionairre
How did you implement the project
1. A small but statistically significant improvement in some of the voice measurements. 2. The group has grown and now offered to other conditions. 3. Patient led support to all members of the group.
Voices were measured using the Frenchay Dysarthria Assessment. Quality of Life was measured using the pt reported PDQ 39. Results were entered into a data base and analysed by an NHS statistician. The results are now in report form available from the PCT. It is planned to submit them for publication soon.
Key learning points
Voice therapy can be provided for long term conditions in a long term manner. Involving patients in running the project gave it a real sense of "expert patient" approach. Ongoing funding is small, teachers salary plus rent for large room, approx £2,500 per year.
Parkinson's Nurse Specialist
Is the example industry-sponsored in any way?