Information for the public
Givosiran (Givlaari) is available on the NHS as a possible treatment for acute hepatic porphyria in adults and young people aged 12 and older if they have 4 attacks or more within 12 months.
Is this treatment right for me?
Your healthcare professionals should give you clear information, talk with you about your options and listen carefully to your views and concerns. Your family can be involved too, if you wish. Read more about making decisions about your care.
Questions to think about
- How well does it work compared with other treatments?
- What are the risks or side effects? How likely are they?
- How will the treatment affect my day-to-day life?
- What happens if the treatment does not work?
- What happens if I do not want to have treatment? Are there other treatments available?
Information and support
These organisations can give you advice and support:
- British Porphyria Association, 0300 30 200 30
- Global Porphyria Advocacy Coalition (GPAC), 0300 30 200 30
You can also get support from your local Healthwatch.
NICE is not responsible for the quality or accuracy of any information or advice provided by these organisations.
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