Elamipretide for treating Barth syndrome in people of any age [ID6545]

Status:

In progress

Technology type:

Medicine

Decision:

Selected

Reason for decision:

Anticipate the topic will be of importance to patients, carers, professionals, commissioners and the health of the public to ensure clinical benefit is realised, inequalities in use addressed, and help them make the best use of NHS resources

Process:

STA Standard

ID number:

6545

Provisional Schedule

Consultation on suggested remit, draft scope and provisional stakeholder list of consultees and commentators:

03 March 2026 - 31 March 2026

Project Team

Project lead

Emily Richards

Email enquiries

If you have any queries please email scopingta@nice.org.uk

Timeline

Key events during the development of the guidance:

For further information on how we select topics for development, please see our page about topic prioritisation