Recommendations for research

The guideline committee has made the following recommendations for research.

Key recommendations for research

1 Assistive technology

How effective is assistive technology in enabling disabled children and young people with severe complex needs to express their views to education, health, and social care services?

For a short explanation of why the committee made the recommendation for research, see the rationale section on communication aids.

Full details of the evidence and the committee's discussion are in evidence review G: promoting and maintaining inclusion, independence and wellbeing.

2 Environmental adaptations

What are the most effective environmental adaptations to ensure the suitability and accessibility of the settings where disabled children and young people with severe complex needs receive education, health and social care support?

For a short explanation of why the committee made the recommendation for research, see the rationale section on environmental accessibility.

Full details of the evidence and the committee's discussion are in evidence review I: suitability and accessibility of environments.

3 Dedicated key workers

What is the effectiveness of dedicated key workers for delivering joined-up services to meet the education, health and social care needs of disabled children and young people with severe complex needs?

For a short explanation of why the committee made the recommendation for research, see the rationale section on key working support.

Full details of the evidence and the committee's discussion are in evidence review N: commissioning, practice and service delivery models.

4 Care close to home

What are the most effective commissioning, practice and service delivery models to deliver joined-up services to meet the education, health and social care needs of disabled children and young people with severe complex needs while enabling them to stay close to home?

For a short explanation of why the committee made the recommendation for research, see the rationale section on local authorities and health commissioners.

Full details of the evidence and the committee's discussion are in evidence review N: commissioning, practice and service delivery models.

5 Short break services

What components of short break services are most effective for disabled children and young people with severe complex needs and their families and carers?

For a short explanation of why the committee made the recommendation for research, see the rationale section on coordinating education, health and care (EHC) plan process changes with local services, training and short breaks.

Full details of the evidence and the committee's discussion are in evidence review D: supporting families and carers.

Other recommendations for research

Telehealth and virtual platforms

What is the effectiveness of telehealth and virtual platforms for communicating with disabled children and young people with severe complex needs and providing education, health and social care interventions?

For a short explanation of why the committee made the recommendation for research, see the rationale section on principles for working with children, young people and their families.

Full details of the evidence and the committee's discussion are in evidence review B: involving children and young people.

Joint commissioning arrangements

What are the most effective joint commissioning arrangements for disabled children and young people with severe complex needs?

For a short explanation of why the committee made the recommendation for research, see the rationale section on local authorities and health commissioners.

Full details of the evidence and the committee's discussion are in evidence review N: commissioning, practice and service delivery models.

  • National Institute for Health and Care Excellence (NICE)