Information for the public

Questions to ask about care in the last days of life

  • What help can I get for symptoms such as pain, sickness, breathlessness, anxiety, confusion, agitation and noisy breathing?

  • Can I refuse or ask for a particular treatment?

  • Why have I been offered a particular type of treatment? How long will it take to work?

  • Are there any side effects to the treatments I am being offered?

  • What happens if the treatment I'm offered makes me feel too sleepy?

  • Will my care be different depending on where I'm being cared for?

  • Can I choose where I wish to die?

  • What happens if I change my mind about earlier decisions I made about my care?

  • Can I choose who stays with me as I near the end of my life?

  • Is there someone I can talk to about my fears and anxiety?

  • If I am given a 'just in case' box, does it mean I am going to develop symptoms?

  • What will happen if I become too ill to make my own decisions?

  • Will having fluids through a tube or drip help me at the end of my life?

Questions for family members, friends or other people important to the person who is dying

  • What can I do to help and support the person who is dying?

  • Is there any additional support available that I as a carer might benefit from or be entitled to?

  • Will I be kept informed of the person's wishes?

  • Will I be told when the person is likely to die?

  • Does the person who is dying need to be told that they are in the last days of life?

  • Information Standard