Quality statement 3: Coordinated care

Quality statement

Adults with multiple sclerosis (MS) have a single point of contact who coordinates access to care from a multidisciplinary team with expertise in MS.

Rationale

Adults with MS have different needs for information, advice and support, and this will change as their condition progresses. Support should be tailored to the individual person and responsive to changing needs, including relapses, acute deteriorating symptoms and progression. A single point of contact will ensure that adults with MS can access care and support from health and social care practitioners, which is relevant to their specific needs.

Quality measures

Structure

a) Evidence of local arrangements to provide adults with MS with a single point of contact who coordinates access to care from a multidisciplinary team with expertise in MS.

Data source: Local data collection.

b) Evidence of local arrangements for a multidisciplinary team with expertise in MS to care for adults with MS.

Data source: Local data collection.

Process

Proportion of adults with MS with a single point of contact who coordinates access to care from a multidisciplinary team with expertise in MS.

Numerator – The number in the denominator with a single point of contact who coordinates access to care from a multidisciplinary team with expertise in MS.

Denominator – The number of adults with MS.

Data source: Local data collection.

Outcome

a) Patient satisfaction with a single point of contact for coordination of access to care.

Data source: Local data collection.

b) Patient satisfaction with timeliness of access to care from the multidisciplinary team with expertise in MS.

Data source: Local data collection.

What the quality statement means for service providers, health and social care practitioners, and commissioners

Service providers (neurology services) ensure that adults with MS have a single point of contact who coordinates access to care from a multidisciplinary team with expertise in MS.

Health and social care practitioners (members of the multidisciplinary team) provide coordinated care for adults with MS through a single point of contact.

Commissioners (NHS England local area teams and clinical commissioning groups) ensure that, for adults with MS, they commission neurology services that have a single point of contact who coordinates access to care from a multidisciplinary team with expertise in MS.

What the quality statement means for patients, service users and carers

Adults with MS have someone they can contact to help them get the care they need from health and care services. They know when and how to contact this person. They can talk about any changes in their condition and any extra or different support they might need. Support should be available from a team with training and skills in managing MS.

Source guidance

Definitions of terms used in this quality statement

Multidisciplinary team with expertise in MS

The team should involve professionals who have expertise in managing MS, including consultant neurologists, MS nurses, physiotherapists and occupational therapists.

Other professionals should be involved, according to the needs of the individual adult with MS, such as rehabilitation physicians, speech and language therapists, psychologists, dietitians, GPs, social care and continence specialists. A multidisciplinary team approach should encompass all these perspectives as well as those of the person with MS and their family.

[Multiple sclerosis in adults: management (NICE guideline CG186) recommendation 1.3.1 and full guideline section 7.6]