Motor neurone disease

Quality statements

Statement 1 Adults diagnosed with motor neurone disease (MND) are given information about the diagnosis, prognosis and management of MND by a consultant neurologist with expertise in treating people with MND.

Statement 2 Adults with MND who have respiratory impairment are offered non‑invasive ventilation (NIV) based on regular assessments of respiratory function and symptoms.

Statement 3 Adults with MND receive tailored equipment and adaptions without delay, based on regular multidisciplinary team assessments.

Statement 4 Adults with MND receive personal care and support from a consistent team of workers who are familiar with their needs.

Statement 5 Adults with MND are given opportunities to discuss their preferences and concerns about end of life care at diagnosis and key stages of disease progression.