Quality statement 1: Clinical nurse specialist
Adults with oesophago-gastric cancer have access to an oesophago-gastric clinical nurse specialist.
Adults with oesophago-gastric cancer need information and support to help them adapt to physical changes and reduced quality of life. A clinical nurse specialist in oesophago-gastric cancer can provide consistent and tailored information throughout care, potentially reducing the impact of these changes.
Evidence of the availability of clinical nurse specialists who specialise in the care and support of adults with oesophago-gastric cancer.
Data source: Local data collection, for example, workforce plans or staff rotas.
Proportion of adults with oesophago-gastric cancer who have contact details for an oesophago-gastric clinical nurse specialist.
Numerator – the number in the denominator who have contact details for an oesophago-gastric clinical nurse specialist.
Denominator – the number of adults with oesophago-gastric cancer.
Data source: Local data collection, for example, records of contact details, such as name and telephone number, being given for clinical nurse specialists in patient records.
a) Patient satisfaction with the availability of a clinical nurse specialist, reported by adults with oesophago-gastric cancer.
Data source : Quality Health National Cancer Patient Experience Survey. The survey contains the following question: How easy or difficult has it been for you to contact your clinical nurse specialist?
b) Patient satisfaction with information provided by the clinical nurse specialist, reported by adults with oesophago-gastric cancer.
Data source : Quality Health National Cancer Patient Experience Survey. The survey contains the following question: When you have had important questions to ask your clinical nurse specialist, how often have you got answers you could understand?
Service providers (secondary and tertiary care centres) ensure that they have the capacity and expertise for adults with oesophago-gastric cancer to have access to a clinical nurse specialist at all stages of their care.
Healthcare professionals (members of oesophago-gastric cancer multidisciplinary teams) ensure that adults with oesophago-gastric cancer have access to a clinical nurse specialist. The clinical nurse specialist should provide support and consistent information for adults with oesophago-gastric cancer, as well as details of how to contact them in the future. This means that people have support at all stages of their care.
Commissioners (clinical commissioning groups and NHS England) ensure that they commission services that can provide clinical nurse specialists with expertise in oesophago-gastric cancer to support all adults with oesophago-gastric cancer throughout all stages of care.
Adults with oesophago-gastric cancer are able to contact a clinical nurse specialist (a nurse experienced in treating oesophago-gastric cancer) who can provide information, advice and support throughout their care.
Oesophago-gastric cancer: assessment and management in adults (2018) NICE guideline NG83, recommendation 1.1.1
People should be provided with information that they can easily read and understand themselves, or with support, so they can communicate effectively with health and social care services. Information should be in a format that suits their needs and preferences. It should be accessible to people who do not speak or read English, and it should be culturally appropriate and age appropriate. People should have access to an interpreter or advocate if needed.
For people with additional needs related to a disability, impairment or sensory loss, information should be provided as set out in NHS England's Accessible Information Standard.