Information for the public
they have chronic kidney disease stage 2 or 3 at the start of treatment and
there is evidence of rapidly progressing disease.
If you have rapidly progressing autosomal dominant polycystic kidney disease with chronic kidney disease stage 2 or 3 at the start of treatment, and your doctor thinks that tolvaptan is the right treatment, you should be able to have the treatment on the NHS.
Tolvaptan should be available on the NHS within 3 months of the guidance being issued.
If you are not eligible for treatment as described above, you should be able to continue taking tolvaptan until you and your doctor decide it is the right time to stop.