This is an update to NICE guideline NG217 (published April 2022 and previously updated January 2025).
We are reviewing recommendations 6.4.2 to 6.4.4 in section 6.4 on self-limited epilepsy with centrotemporal spikes. We are in the process of:
- reviewing the licensed status for treatments recommended for self-limited epilepsy with centrotemporal. spikes including the UK licencing approval of sultiame in January 2025.
- searching for any new evidence on treatments for self-limited epilepsy with centrotemporal spikes.
- we have appointed an expert working group to advise on any changes to recommendations.
- we will consult on any proposed changes.
Draft guidance consultation
You can now review and comment on this draft guideline.
The consultation closes at 5pm on Wednesday 27th May 2026.
How to comment
1. Register your organisation or comment as an individual
If you’re commenting for an organisation, your organisation needs to be registered as a stakeholder.
Not eligible? Contact the stakeholder organisation that most closely represents your interests and pass your comments to them.
We can accept comments from individuals. These will be considered, but you won’t get a formal response and they won’t be posted on the NICE website. Wherever possible we encourage you to submit your comments through a registered stakeholder organisation.
2. Read the consultation documents
Documents to comment on:
- Draft guideline
- Evidence review Q
- Resource impact summary report
- Equality and health inequalities assessment 4
- Declaration of interests
- Supporting documentation - Acknowledgements
Other information about the consultation
Developing NICE guidelines: how to get involved
3. Add your comments
- You must use this comments form.
- You must declare any links with, or funding from, the tobacco industry
If you share similar views with another organisation, send a joint response.
Make sure you consider:
- The areas that will have the biggest impact on practice and be challenging to implement
- How to help users overcome challenges
Developing NICE guidelines: how to get involved suggests some other areas to comment on.
4. Email the form to us
Email: Epilepsiescypadults@nice.org.uk
Deadline: 5pm on Wednesday 27th May 2026
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