4 The Guideline Development Group, National Collaborating Centre and NICE project team, and declarations of interests

4 The Guideline Development Group, National Collaborating Centre and NICE project team, and declarations of interests

4.1 Guideline Development Group

Glynis Murphy (Chair)
Professor of Clinical Psychology and Disability, University of Kent; Co‑Director, Tizard Centre, University of Kent

David Allen
Clinical Director, Positive Response Training and Consultancy; Professor, Tizard Centre, University of Kent

David Branford
Chief Pharmacist, Derbyshire Healthcare Foundation NHS Trust (retired)

Alick Bush
Lead Psychologist, St Andrew's Healthcare

Carole Buckley
GP, The Old School Surgery, Bristol

Vivien Cooper
Carer representative and Chief Executive Officer, The Challenging Behaviour Foundation

Jo Dwyer
Clinical Specialist Occupational Therapist, Lewisham Team for Adults with Learning Disabilities, Guy's and St Thomas' NHS Foundation Trust

Angela Hassiotis
Professor, University College London and Honorary Consultant Psychiatrist, Camden and Islington Foundation Trust

Phil Howell
Physical Interventions Accreditation Scheme Manager and Positive Behaviour Support Consultant, British Institute of Learning Disabilities

Simon Jones
Head of Behavioural Support, Care UK

Richard Mills
Research Director, Research Autism

David Newton
Team Manager, Adult Safeguarding Quality Assurance Team, Adult Social Care Directorate, Nottingham City Council

Steve Noone
Consultant Clinical Psychologist, Northumberland, Tyne and Wear Foundation NHS Trust

Phil Perkins
Senior Community Learning Disability Nurse for Children and Young People, Surrey and Borders Partnership NHS Foundation Trust

Victoria Slonims
Senior Consultant Speech and Language Therapist, and Honorary Senior Lecturer, Evelina Children's Hospital, Guy's and St Thomas' NHS Foundation Trust

Keith Wyncoll
Carer representative

4.2 National Collaborating Centre for Mental Health

Steve Pilling
Director

Katherine Andrea
Senior Project Manager

David Glynn (from September 2014)
Health Economist

Bronwyn Harrison
Systematic Reviewer

Elena Marcus (from August 2014)
Research Assistant

Ifigeneia Mavranezouli
Senior Health Economist

Cheryl Palmer
Research Assistant

Clare Taylor
Senior Editor

Craig Whittington (from September 2014)
Associate Director (Clinical Effectiveness); Senior Systematic Reviewer

4.3 NICE project team

Sarah Willett
Guideline Lead

Martin Allaby
Clinical Adviser

Clifford Middleton
Guideline Commissioning Manager

Rebecca Pye
Guideline Coordinator

Nichole Taske
Technical Lead

Bhash Naidoo
Health Economist

Katie Prickett
Editor

4.4 Declarations of interests

The following members of the Guideline Development Group made declarations of interests. All other members of the Group stated that they had no interests to declare. The conflicts of interest policy (2007) was followed until September 2014, when an updated policy was published.

Member

Interest declared

Type of interest

Decision taken

Glynis Murphy (Chair)

Until October 2012 employed part-time by NHS.

Conduct consultancy for NHS, police, lawyers.

Co‑editor Journal of Applied Research in Intellectual Disability.

Member Care Quality Commission panel.

Member National Offender Management Service accreditation panel.

Personal pecuniary interest

Declare and participate

Glynis Murphy (Chair)

Co‑director Tizard Centre in receipt of grants (National Institute for Health Research/ charities).

Tizard Centre training for staff from Learning Disabilities.

Tizard Centre research grant; treatment of sexually abusive behaviour in young people with a learning disability.

Non‑personal pecuniary interest

Declare and participate

Glynis Murphy (Chair)

Conducted own research into challenging behaviour.

Chair Sexual Offender Treatment South East Collaborative‑Intellectual Disability

Immediate Past President International Association for the Scientific Study of Intellectual and Developmental Disabilities.

Personal non‑pecuniary interest

Declare and participate

Steve Pilling (Facilitator)

Medical Research Council, research funding looking at psilocybin.

Grant from National Alliance for Research on Schizophrenia and Depression to look at transcranial direct-current stimulation in treatment of depression.

Personal family interest

Declare and participate

David Allen

Positive Response Training and Consultancy provides training to health and social care staff and families supporting people with learning disabilities and challenging behaviour. It uses an over-arching positive behaviour support model and provides training in both proactive, preventative strategies and reactive strategies. The physical intervention training component of the latter is accredited by the British Institute of Learning Disabilities.

Editor of International Journal of Positive Behavioural Support.

Collaborator in randomised controlled trial of Training in Positive Behavioural Support (Hassiotis, 2013).

Joint applicant, Reduction in Anti-psychotic Medication in People with Learning Disability and Challenging Behaviour (Kerr, Felce 2013).

Personal pecuniary interest

Declare and participate

David Allen

Honorary Professor, University of Kent

Non‑personal pecuniary interest

Declare and participate

David Allen

Member of various working groups set up as part of Positive and Safe Programme.

Member of Positive and Safe Programme Board.

Member of group that recently produced competence framework for positive behaviour support.

Personal non‑pecuniary interest

Declare and participate

David Brandford

Development of guideline on dysphagia in learning disabilities supported by Rosemont Pharmaceuticals.

Opinion on lisdexamphetamine supported by Pharmacy management.

Opinion on lurasidone supported by Sunovion Pharmaceuticals.

Personal pecuniary interest

Declare and participate

David Brandford

PhD on antipsychotic drugs in learning disabilities.

Chairman of the English Pharmacy Board of the Royal Pharmaceutical Society.

Elected member of the College of Mental Health Pharmacy.

Editor of Frith prescribing guidelines for adults with learning disability (no financial interest).

Non‑personal pecuniary interest

Declare and participate

Alick Bush

Employed 0.6 whole time equivalent by St Andrews Healthcare, a charity that provides inpatient care to adults with learning disabilities and autism.

Provides a clinical psychology service to patients in the hospital.

Personal pecuniary interest

Declare and participate

Alick Bush

Policy lead, British Psychological Society Faculty of Learning Disabilities – promoted the use of predominantly psychosocial interventions for adults who challenge services, including positive behaviour support.

Until December 2014, Chair of the Learning Disabilities Professional Senate – an alliance of the Professional Bodies that provide support to people with learning disabilities. Representative of the Professional Senate on the Learning Disability Programme Board. On a range of sub-committees and working groups that are responsible for delivering the Transforming Care action plan following the Winterbourne View review. This includes being a member of the Expert Advisory Group on the promotion of positive behaviour support.

Co-editor of Challenging Behaviour: a unified approach.

Acted as a special advisor on a Care Quality Commission inspection.

Personal non‑pecuniary interest

Declare and participate

Carole Buckley

Non-Executive Director GP Care (UK) Ltd. Private provider of NHS services to patients.

Chair St Mathias holdings Ltd Practice based pharmacy offering services to residential care homes.

Personal pecuniary interest

Declare and participate

Carole Buckley

Member Royal College of General Practitioners intellectual disability professional network.

Clinical Champion for Autism by the Royal College of General Practitioners.

Joint recipient of a grant from Bristol University to implement focus groups for service users and carers in order to inform GP practice.

Grant from the Academic Health Science Network South West to hold a conference in Taunton 19/11/14 for commissioners and providers of autism services.

Non‑personal pecuniary interest

Declare and participate

Vivien Cooper

Member, Transforming Care Assurance Board (formerly Winterbourne View Joint Improvement Board).

Member, Engagement Steering Group for Joint Improvement team (from June 2014 formerly Chair).

Respond Steering Group for support for Winterbourne View families.

Department of Health Advocacy Group.

Department of Health Medication Collaborative Group, Steering Group.

Care Quality Commission Learning Disability Advisory Group.

Hassiotis University College London Positive Behaviour Support Research Group.

Tizard E-Pats Fellowship Steering Group.

Chair, Challenging Behaviour National Strategy Group.

Member, Council for Disabled Children Restrictive Physical Intervention Steering Group.

Member, Department of Health Winterbourne View Capital Funding Panel.

Member, Learning Disabilities Professional Senate.

Member, School for Social Care Research User Carer Practitioner Reference Group.

Member, Learning Disabilities Voluntary and Community Sectors Steering Group (July – November 2014).

Member, Children and Young People Collaborative Steering Group.

Personal non‑pecuniary interest

Declare and participate

Angela Hassiotis

Current National Institute for Health Research Health Technology Assessment grant on the evaluation of positive behaviour support.

Honoraria received by Novartis for consultancy on treatments for Fragile X syndrome.

Other research funding (National Institute for Health Research – Research for Patient Benefit).

Associate Editor of Journal of Policy and Practice in Intellectual and Developmental Disabilities.

Associate Editor of Journal of Applied Research in Intellectual Disabilities.

Editorial Board of Advances in Mental Health Intellectual Disabilities.

Treasurer Faculty of the Psychiatry of Intellectual Disabilities.

Honoraria for lectures.

Conducting a study looking at music therapy and people with a learning disability. Co-applicant on a National Institute for Health Research Health Technology Assessment funded study evaluating music therapy for children with autism.

Non‑personal pecuniary interest

Declare and participate

Angela Hassiotis

Published on challenging behaviour for some years following research carried out under own supervision.

Personal non‑pecuniary interest

Declare and participate

Simon Jones

Positive Range of Options to Avoid Crisis and use Therapy, Strategies for Crisis Intervention and Prevention (PROACT-SCIPr-UK) trainer, which is a British Institute of Learning Disabilities accredited physical intervention methodology.

Personal pecuniary interest

Declare and participate

Richard Mills

Research Director at Research Autism.

AT-Autism (Autism Training Ltd) – Associate.

London Borough of Redbridge – training in clinical interviewing techniques for Approved Mental Health Professionals when working with individuals with Asperger's syndrome and autism in conjunction with AT-Autism.

Laskaridou Foundation Athens, Greece – Mentor teacher programme for children with autism and challenging behaviour in conjunction with AT-Autism.

Associate, Tizard Centre, University of Kent at Canterbury – Curriculum development Social Work Training.

Personal pecuniary interest

Declare and participate

Richard Mills

Joint recipient of a grant from Bristol University to implement focus groups for service users and carers in order to inform GP practice.

Staff training Jersey Employment Trust –through Research Autism.

Non‑personal pecuniary interest

Declare and participate

Richard Mills

Fellow – Royal Society of Medicine.

Member – International Society for Autism Research.

Honorary Research Fellow at the Department of Psychology, University of Bath.

Senior Research Fellow, Bond University, Queensland, Australia.

Member – Northern Ireland Advisory Committee on Autism Research.

Personal non‑pecuniary interest

Declare and participate

David Newton

Employed by a local authority; involves liaison with local authority and local clinical commissioning group contracts and commissioning groups and quality assurance. Some incidental input into local authority core contract and service specification content.

Personal pecuniary interest

Declare and participate

Victoria Slonims

Autism Diagnostic Observation Schedule trainer.

Personal pecuniary interest

Declare and participate

Craig Whittington

Member of the scientific steering committee for a US company, Doctor Evidence Llc. Doctor Evidence is a specialty software platform and services company with clients from across the healthcare ecosystem. The role includes a share option (3 year vesting) and a meeting stipend.

Personal pecuniary interest

Declare and participate

Keith Wyncoll

Occasional trainer – The Challenging Behaviour Foundation.

Lay member of NHS England Patient and Public Voice Assurance Group – Specialised Commissioning.

Personal pecuniary interest

Declare and participate

  • National Institute for Health and Care Excellence (NICE)