The Diamond Blackfan Anaemia Charity, 0845 094 1548
The ITP Support Association
MDS UK Patient Support Group, 020 7733 7558
UK Thalassemia Society, 020 8882 0011
You can also go to NHS Choices for more information.
NHS Blood and Transplant also has information for patients having a blood transfusion.
NICE is not responsible for the quality or accuracy of any information or advice provided by these organisations.
Adults may also like to read NICE's information for the public on patient experience in adult NHS services. This sets out what adults should be able to expect when they use the NHS. We also have more information on the NICE website about using health and social care services.