Recommendations

People have the right to be involved in discussions and make informed decisions about their care, as described in NICE's information on making decisions about your care.

Making decisions using NICE guidelines explains how we use words to show the strength (or certainty) of our recommendations, and has information about prescribing medicines (including off-label use), professional guidelines, standards and laws (including on consent and mental capacity), and safeguarding.

1.1 Overarching principles of good practice

1.1.1 Ensure local communities, community and voluntary sector organisations and statutory services work together to plan, design, develop, deliver and evaluate health and wellbeing initiatives (see the section on developing collaborations and partnerships to meet local needs and priorities and the section on involving people in peer and lay roles to represent local needs and priorities). Do this by:

  • Using evidence‑based approaches to community engagement (see collaborations and partnerships and peer and lay roles).

  • Being clear about which decisions people in local communities can influence and how this will happen.

  • Recognising, valuing and sharing the knowledge, skills and experiences of all partners, particularly those from the local community (see the section on learning and training).

  • Making each partner's goals for community engagement clear.

  • Respecting the rights of local communities to get involved as much or as little as they are able or wish to.

  • Establishing and promoting social networks and the exchange of information and ideas (on issues such as different cultural priorities and values).

1.1.2 Recognise that building relationships, trust, commitment, leadership and capacity across local communities and statutory organisations needs time:

1.1.3 Support and promote sustainable community engagement by encouraging local communities to get involved in all stages of a health and wellbeing initiative. Do this by:

  • identifying and working with community networks and organisations, particularly those reaching vulnerable groups or recently established communities

  • involving communities in setting priorities.

1.1.4 Ensure decision‑making groups include members of the local community who reflect the diversity of that community. Encourage individual members to share the views of their wider networks and others in the community. Groups should adhere to the key principles outlined in this section.

1.1.5 Feed back the results of engagement to the local communities concerned, as well as other partners. This could be communicated in a range of ways, for example, via the local newspaper or community website, via community groups or via public events in community venues or other widely accessible places. See the section on evaluation and feedback.

1.2 Developing collaborations and partnerships to meet local needs and priorities

The following recommendations are for directors of public health and other strategic leads who plan, commission or provide health and wellbeing initiatives in collaboration with local communities.

1.2.1 Support development of collaborations and partnerships to encourage local communities to take part in initiatives to improve their health and wellbeing and reduce health inequalities. Use local networks and community and voluntary organisations to help achieve this.

1.2.2 Base collaborations and partnerships on local needs and priorities. Effective approaches are:

  • An asset-based approach – to build on the strengths and capabilities of local communities.

  • Community development – to give local communities at risk of poor health support to help identify their needs and tackle the root causes. This support comes from statutory organisations.

  • Community‑based participatory research – to provide collaborations and partnerships with background knowledge and insights into the nature of the community they are working with.

  • Area‑based initiatives – to work with local communities to improve local health and education and support urban regeneration and development to tackle social or economic disadvantage.

  • Co-production methods – to ensure statutory organisations and the community can participate on an equal basis to design and deliver health and wellbeing initiatives.

    For more details, see Public Health England's guide to community-centred approaches for health and wellbeing.

1.3 Involving people in peer and lay roles to represent local needs and priorities

The following recommendations are for directors of public health and other strategic leads who plan, commission or provide health and wellbeing initiatives in collaboration with local communities.

1.3.1 Draw on the knowledge and experience of local communities and community and voluntary organisations to identify and recruit people to represent local needs and priorities. Ask those recruited to take on peer and lay roles as part of the health and wellbeing initiative. Effective peer and lay approaches are:

  • Bridging roles to establish effective links between statutory, community and voluntary organisations and the local community and to determine which types of communication would most effectively help get people involved.

  • Carrying out 'peer interventions'. That is, training and supporting people to offer information and support to others, either from the same community or from similar backgrounds (see the section on learning and training).

  • Community health champions who aim to reach marginalised or vulnerable groups and help them get involved.

  • Volunteer health roles whereby community members get involved in organising and delivering activities.

    For more details, see Public Health England's guide to community-centred approaches for health and wellbeing.

1.3.2 Consider offering training and mentoring support to community members (see the section on learning and training). Also consider providing formal recognition of their contribution and other opportunities for development. This could include, for example, accredited training.

1.4 Local approach to making community engagement an integral part of health and wellbeing initiatives

Directors of public health, other strategic leads and strategic groups (including health and wellbeing boards) who plan, commission or provide health and wellbeing initiatives should:

1.4.1 Consider mechanisms that can ensure community engagement is an integral part of health and wellbeing initiatives. This could include:

1.4.2 Follow the principles of good practice (see the section on overarching principles of good practice) and work with local communities and community and voluntary organisations to:

1.4.3 Address health inequalities by ensuring additional efforts are made to involve local communities at risk of poor health. This includes people who are vulnerable, marginalised, isolated or living in deprived areas.

1.5 Making it as easy as possible for people to get involved

The following recommendations are for all those who plan and provide health and wellbeing initiatives in collaboration with local communities.

1.5.1 Work with local communities and community and voluntary organisations to:

  • Identify barriers to involvement, particularly for vulnerable groups and recently established communities.

  • Decide which types of communication would get people interested and involved. Include ways of communicating that reflect the needs of: vulnerable or isolated groups, recently established communities, those with low literacy or learning difficulties, and people who do not use digital or social media.

1.5.2 Provide the support people need to get involved. This includes:

  • Involving community members in the initiative's recruitment process (see the section on involving people in peer and lay roles to represent local needs and priorities).

  • Offering to phone, write, email, use social media or call round to see people.

  • Providing information in plain English and locally spoken languages for non‑English speakers. This could include encouraging members of the community who speak a community language to get involved in translating it.

  • Ensuring the timing of events meets people's needs.

  • Establishing and meeting the needs of participants with disabilities. For example, providing information in formats that people can understand (see NHS England's Accessible Information Standard), using venues that are fully accessible to them and providing the equipment they need.

  • Providing childcare support, such as crèche facilities.

  • Using places familiar to community participants and creating an informal atmosphere.

  • Helping them meet mandatory requirements, for example, to get disclosure and barring service checks if necessary (see the government's information on the disclosure and barring service).

Terms used in this guideline

This section defines terms that have been used in a specific way for this guideline. For other definitions, see the NICE glossary and the Think Local, Act Personal (TLAP) Care and Support Jargon Buster.

Collaborations and partnerships

Alliances between community members and others to improve health and wellbeing and reduce health inequalities. They may include community and voluntary organisations and statutory services.

Communities

A community is a group of people who have common characteristics or interests. Communities can be defined by: geographical location, race, ethnicity, age, occupation, a shared interest or affinity (such as religion and faith) or other common bonds, such as health need or disadvantage. People who are socially isolated are also considered to be a community group.

Community engagement

Community engagement encompasses a range of approaches to maximise the involvement of local communities in local initiatives to improve their health and wellbeing and reduce health inequalities. This includes: needs assessment, community development, planning, design, development, delivery and evaluation.

Community health champions

Volunteers who, with training and support, help improve the health and wellbeing of their families, communities or workplaces. They:

  • motivate and empower people to get involved in health‑promoting activities

  • create groups to meet local needs

  • direct people to relevant support and services.

Health and wellbeing initiatives

Health and wellbeing initiatives cover all strategies, programmes, services, activities, projects or research that aim to improve health (physical and mental) and wellbeing and reduce health inequalities.

Peer and lay roles

'Peer and lay roles' are carried out by community members working in a non‑professional capacity to support health and wellbeing initiatives. 'Lay' is the general term for a community member. 'Peer' describes a community member who shares similar life experiences to the community they are working with. Peer and lay roles may be paid or unpaid (that is, voluntary).

Volunteers

Volunteers are community members in unpaid roles.

  • National Institute for Health and Care Excellence (NICE)