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End of life care for infants, children and young people with life-limiting conditions: planning and management

  • NICE guideline
  • Reference number: NG61
  • Published:  07 December 2016
  • Last updated:  25 July 2019
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  • End of life care for children and young people: the care you should expect
  • What is end of life care?
  • About your care team
  • What information and support should we expect?
  • Emotional support
  • Making a care plan
  • Choosing where your child will be cared for
  • Keeping your child comfortable
  • Support during the final days
  • Supporting parents and carers
  • Where can I find out more?
  • What are NICE guidelines?

Where can I find out more?

  • Helen & Douglas House, 0186 579 4749

  • Sands (stillbirth and neonatal death charity), 0207 436 5881

  • Shooting Star Chase, 0193 282 3100

  • Teenage Cancer Trust, 0207 612 0370

  • Together for Short Lives, 0808 808 8100

You can also go to NHS Choices for more information on end of life care and specific medical conditions.

NICE is not responsible for the quality or accuracy of any information or advice provided by these organisations.

NICE has also written advice to help you if your child will soon be moving from children's to adult services.

This page was last updated: 07 December 2016


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