Quality statement 1: Planning transition

Quality statement

Young people who will move from children's to adults' services start planning their transition with health and social care practitioners by school year 9 (aged 13 to 14 years), or immediately if they enter children's services after school year 9.

Rationale

Starting to plan their transition as early as possible can lead to a better experience for young people moving from children's to adults' services. Early planning allows a more gradual process. A sudden move to adults' services with no time for preparation or support can lead to young people and their families losing confidence and disengaging with services. Early planning, led by the health and social care practitioners but with full involvement from the young person, allows young people more time to be involved in decisions and to adjust to changes to their future care. It is recognised that for some young people, those covered by health and social care or education legislation, early transition planning is already a legal requirement.

Quality measures

Structure

Evidence of local arrangements to ensure that young people who will move from children's to adults' services start planning their transition with health and social care practitioners by school year 9 (aged 13 to 14 years), or immediately if they enter children's services after school year 9.

Data source: Local data collection.

Process

a) Proportion of young people in school year 9 (aged 13 to 14 years) who will move from children's to adults' services who have started planning their transition.

Numerator – the number in the denominator who have started planning their transition.

Denominator – the number of young people in school year 9 (aged 13 to 14 years) who will move from children's to adults' services.

Data source: Local data collection.

b) Proportion of young people entering children's services after school year 9 and who will move to adults' services who started planning their transition immediately.

Numerator – the number in the denominator who started planning their transition immediately.

Denominator – the number of young people entering children's services after school year 9 and who will move to adults' services.

Outcome

a) Satisfaction with planning for transition and transfer as reported by young people and their carers.

Data source: Local data collection.

b) Proportion of young people attending adults' services after transfer from children's services who continue to engage with services (for measurement purposes this could be engagement at 1-year after transfer).

Data source: Local data collection.

c) Proportion of young people who have transferred from children's services, who do not attend their first meeting or appointment with each adults' service.

Data source: Local data collection.

What the quality statement means for different audiences

Service providers (children's and adults' health, mental health and social care providers) ensure that systems are in place to identify young people who will move from children's to adults' services and to start planning their transition by school year 9 (aged 13 to 14 years), or immediately if they enter children's services after school year 9.

Health and social care practitioners (such as hospital consultants, nurses, social workers and mental health workers) involve children and young people in planning their transition from children's to adults' services by school year 9 (aged 13 to 14 years), or immediately if they enter children's services after school year 9.

Commissioners (clinical commissioning groups, local authorities and NHS England) ensure that they commission services that identify young people who will move from children's to adults' services and start planning their transition by school year 9 (aged 13 to 14 years), or immediately if they enter children's services after school year 9. Commissioners should ensure that the planning involves the young person and their parents and carers, as well as the practitioner.

Young people who will move from children's to adults' services work with their health or social care practitioners to start planning for the move by school year 9. For young people who enter children's services after year 9, planning for the move should start immediately. Early planning gives young people time to be involved in decisions and to understand and adapt to changes in their future care.

Parents and carers of young people who will move from children's to adults' services are involved from the start in planning for the move. This gives them time to understand and to adapt to changes in the young person's future care. Their level of involvement will depend on the needs and preferences of the young person.

Source guidance

Transition from children's to adults' services for young people using health or social care services (2016) NICE guideline NG43, recommendation 1.2.1