NICE quality standards describe high-priority areas for quality improvement in a defined care or service area. Each standard consists of a prioritised set of specific, concise and measurable statements. NICE quality standards draw on existing NICE or NICE-accredited guidance that provides an underpinning, comprehensive set of recommendations, and are designed to support the measurement of improvement.
Information about how NICE quality standards are developed is available from the NICE website.
See quality standard advisory committees on the website for details of standing committee 2 members who advised on this quality standard. Information about the topic experts invited to join the standing members is available on the quality standard's webpage.
This quality standard has been incorporated into the NICE pathway on end of life care for people with life-limiting conditions.
NICE has produced a quality standard service improvement template help providers make an initial assessment of their service compared with a selection of quality statements. This tool is updated monthly to include new quality standards.
NICE produces guidance, standards and information on commissioning and providing high-quality healthcare, social care, and public health services. We have agreements to provide certain NICE services to Wales, Scotland and Northern Ireland. Decisions on how NICE guidance and other products apply in those countries are made by ministers in the Welsh government, Scottish government, and Northern Ireland Executive. NICE guidance or other products may include references to organisations or people responsible for commissioning or providing care that may be relevant only to England.
This quality standard is expected to contribute to improvements in the following outcomes:
health-related quality of life for parents, siblings and carers of infants, children and young people having end of life care
experience of end of life care for infants, children and young people, and their families and carers.
It is also expected to support delivery of the Department of Health's NHS outcomes framework 2016–17.
NICE quality standards should be achievable by local services. The potential resource impact is considered by the quality standards advisory committee, drawing on resource impact work for the source guidance. Organisations are encouraged to use the resource impact tool for the NICE guideline on end of life care for infants, children and young people with life-limiting conditions to help estimate local costs.
During the development of this quality standard, equality issues were considered and equality assessments are available. Any specific issues identified during development of the quality statements are highlighted in each statement.
Commissioners and providers should aim to achieve the quality standard in their local context, in light of their duties to have due regard to the need to eliminate unlawful discrimination, advance equality of opportunity and foster good relations. Nothing in this quality standard should be interpreted in a way that would be inconsistent with compliance with those duties.