Quality statement 1: Multidisciplinary teams for young people

Quality statement

Young people (aged 16–24 years) with cancer have their diagnosis, treatment and support agreed and delivered by a cancer-site-specific multidisciplinary team and a teenage and young adult multidisciplinary team.

Rationale

Children's services have well-established models of care to ensure that children with cancer are seen by a children's cancer multidisciplinary team. However, there is variation in access to age-appropriate care for young people. In addition to cancers more commonly found in their own age group, young people can also experience cancers more common to children or adults. It is therefore important for them to be seen by both a cancer-site-specific multidisciplinary team and a teenage and young adult multidisciplinary team, to ensure that they have a correct diagnosis and receive the most effective treatment.

Quality measures

Structure

Evidence of local arrangements for all young people (aged 16–24 years) with cancer to have their diagnosis, treatment and support agreed and delivered by a cancer-site-specific multidisciplinary team and a teenage and young adult multidisciplinary team.

Data source: Local data collection.

Process

a) The proportion of young people (aged 16–24 years) diagnosed with cancer who have their diagnosis, treatment and support agreed by a cancer-site-specific multidisciplinary team and a teenage and young adult multidisciplinary team.

Numerator – the number of people in the denominator who have their diagnosis, treatment and support agreed by a cancer-site-specific multidisciplinary team and a teenage and young adult multidisciplinary team.

Denominator – the number of young people (aged 16–24 years) diagnosed with cancer.

Data source: Local data collection.

b) The proportion of young people (aged 16–24 years) with cancer who have their treatment and support delivered by a cancer-site-specific multidisciplinary team and a teenage and young adult multidisciplinary team.

Numerator – the number of people in the denominator who have their treatment and support delivered by a cancer-site-specific multidisciplinary team and a teenage and young adult multidisciplinary team.

Denominator – the number of young people (aged 16–24 years) with cancer.

Data source: Local data collection.

What the quality statement means for service providers, health and social care practitioners, and commissioners

Service providers ensure that cancer-site-specific multidisciplinary teams and a teenage and young adult multidisciplinary team are in place to agree and deliver the diagnosis, treatment and support for young people (aged 16–24 years) with cancer.

Health and social care practitioners work collaboratively across cancer-site-specific and teenage and young adult multidisciplinary teams to agree and deliver the diagnosis, treatment and support for young people (aged 16–24 years) with cancer.

Commissioners ensure that they commission cancer services for young people (aged 16–24 years) that include provision of cancer-site-specific multidisciplinary teams and a teenage and young adult multidisciplinary team for young people with cancer.

What the quality statement means for patients, service users and carers

Young people with cancer (aged 16–24 years) have their diagnosis, treatment and support agreed and delivered by a team of experts in the specific type of cancer that they have and a team of experts in treating and supporting young people with cancer.

Source guidance

Definitions of terms used in this quality statement

Teenage and young adult multidisciplinary team

A dedicated multidisciplinary team with expertise in cancer-related issues for teenagers and young adults, and their families and carers. The composition of the multidisciplinary team varies depending on the stage in the care pathway, but may include a:

  • lead oncologist/haematologist with experience in teenage and young adult cancer

  • principal treatment centre lead nurse

  • specialist nurse

  • psychologist or level 3 psychology support

  • young people's social worker

  • youth worker or activity coordinator

  • teenage and young adult key worker.

[Adapted from Children and young people with cancer: improving outcomes in children and young people with cancer, Multidisciplinary teams: page 92, table 4; and National Cancer Peer Review Programme Manual for cancer services: teenage and young adults cancer measures 11‑7D‑201 Lead clinician and core team membership]

Cancer-site-specific multidisciplinary team

A dedicated multidisciplinary team with specialist expertise in treating cancer in specific sites. [Adapted from Children and young people with cancer: improving outcomes in children and young people with cancer, Multidisciplinary teams, page 94, paragraph 1]