Quality statement 2: Multidisciplinary team support

Quality statement

Services provide age‑appropriate support from a multidisciplinary team for people with inflammatory bowel disease, and their family members or carers.

Rationale

Inflammatory bowel disease can have diverse effects on a person. In addition to its physical impact, there can be emotional, psychological and social consequences. A multidisciplinary team has a wide range of expertise that can help address these issues, and it is important that services for people with inflammatory bowel disease provide this support.

Quality measures

Structure

Evidence that services provide age‑appropriate support from a multidisciplinary team for people with inflammatory bowel disease, and their family members or carers.

Data source: Local data collection. Data on patient support and the inflammatory bowel disease team are available in the National audit of inflammatory bowel disease (IBD) service provision, sections 2 and 3, and the National audit of paediatric inflammatory bowel disease (IBD) service provision, sections 2 and 3.

Process

a) Proportion of people with inflammatory bowel disease where there is a documented discussion about their needs, and the needs of their family members or carers (if appropriate), for age‑appropriate support from a multidisciplinary team.

Numerator – the number in the denominator where there is a documented discussion about their needs, and the needs of their family members or carers (if appropriate), for age‑appropriate support from a multidisciplinary team.

Denominator – the number of people with inflammatory bowel disease.

Data source: Local data collection. Contained within the Royal College of Physicians' National clinical audit of inpatient care for adults with ulcerative colitis.

b) Proportion of people with inflammatory bowel disease whose needs, and the needs of their family members or carers (if appropriate), for age‑appropriate support from a multidisciplinary team are met.

Numerator – the number in the denominator whose needs, and the needs of their family members or carers (if appropriate), for age‑appropriate support from a multidisciplinary team are met.

Denominator – the number of people with inflammatory bowel disease whose needs for age‑appropriate support from a multidisciplinary team are recorded.

Data source: Local data collection.

Outcome

a) Satisfaction of people with inflammatory bowel disease with the support provided.

Data source: Local data collection. The Experience of inpatients with ulcerative colitis throughout the UK audit asks various questions about patient experience of support in hospital.

b) Satisfaction of family members or carers of people with inflammatory bowel disease with the support provided.

Data source: Local data collection.

What the quality statement means for different audiences

Service providers (district general hospitals) ensure that systems are in place so that people with inflammatory bowel disease, and their family members or carers, have age‑appropriate support from a multidisciplinary team.

Healthcare professionals work within a multidisciplinary team to provide age‑appropriate support to people with inflammatory bowel disease, and their family members or carers.

Commissioners (clinical commissioning groups) ensure that they commission services in which people with inflammatory bowel disease, and their family members or carers, have age‑appropriate support from a multidisciplinary team.

People with inflammatory bowel disease, and their family members or carers, have support from a care team made up of a range of different professionals (including nurses, doctors, dietitians and pharmacists). The type of support they get should depend on the person's age (for example, whether they are an adult or a child), and should help to deal with any concerns about the condition and its treatment.

Source guidance

Definitions of terms used in this quality statement

Age-appropriate support

Age‑appropriate support should be broad‑based and offered by those who are best placed at the time to meet the needs of people with inflammatory bowel disease and their family members or carers. A person's support needs will vary depending on age. For example, a child or young person's concerns might be more focused on body image, transition between services and attending school and higher education, whereas an adult might be more concerned with employment and sexual issues. Other issues for which people may need support include concerns about the disease and its treatment, nutrition and diet, and other aspects of living with a chronic illness. Support could include signposting to reliable and accurate information on a broad range of topics or having access to a dedicated telephone or email service where people can raise concerns or questions.

[Adapted from NICE's guideline on Crohn's disease and IBD Standards, standard A11]

Multidisciplinary team

An inflammatory bowel disease multidisciplinary team should comprise gastroenterologists, colorectal surgeons and clinical nurse specialists with particular expertise and specialist interest in inflammatory bowel disease, a dietitian allocated to gastroenterology, and a pharmacist, pathologist and radiologist with special interest in gastroenterology. The team should have access to essential supporting services with an interest in inflammatory bowel disease, including a psychologist or counsellor, rheumatologist, ophthalmologist, dermatologist, obstetrician, nutrition support team, paediatric gastroenterology clinical network and general practice. There should be a named clinical lead for the inflammatory bowel disease team.

[Adapted from IBD Standards, standards A1 and A2]